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I started this journey into disability as a pro-authoritarian and pro-medical doctor supporter. Failure after failure from authority figures, especially doctors, left me highly skeptical. I am now asking why research is so often ignored, including research failures. I second guess everything a...

Hypothetical - If your whole life is a waking nightmare, and keeps getting worse, how much worse is a PTSD flashback? The past was better than now. However during recovery, whenever we find a cure or if you are one of the lucky few, PTSD might substantially delay recovery. These are questions...

I think there is a lot right now, just being ignored.

Hence why I say their treatments fail. BPS is nearly always just psychosocial, with the social bit being emphasized to try to coerce patients. The primary BPS study that drove a lot of this, what we refer to as the PACE trial, was blatant scientific misconduct. It was not just a bad study, the...

Let me run a thought experiment, based in part on my own comments over the years, and the comments I have read from many patients. What if you were young and healthy? Suddenly you are sick and cannot do much. Adults including doctors are scaring the heck out of you and you are not feeling good...

I wonder how much of that is from misdiagnosis or underdiagnosis, versus patients being unwilling to discuss with a doctor? The problems we can face with an ME/CFS diagnosis can be daunting, and for someone very sick the easiest solution might be simply to never mention it. However its also...

I can barely imagine how many ways this can go wrong. The only good news is if they do a subgroup breakdown on post intervention cardiovascular exercise testing. My guess is this whole approach will be invalidated. I suspect they will have no issues with finding participants initially. I do...

Cooking polyunsaturated fats at high heat also creates trans fats. We can get manufacturers to stop using them, but we also need to change cooking practices, including at fast food outlets and even restaurants.

Quoting Isaac Asimov ... a circle has no end. Loops and spaghetti tangles of loops take a lot of work to understand.

Way older I suspect, try ancient Greece is my thinking. However Freud popularized the notion in medicine, though he was not the first, just the most famous.

Serine had interest maybe three decades ago, transaconitate sounds like something I might have discussed two and a half decades ago; purines have always been high with me, leading to a wrong diagnosis of gout. I am not sure what they mean by metabolites consumed in exercise, guess I will have...

I agree with the conclusion, at least with all the evidence and experience I have taken into account. ME/CFS is a physical disease. Where the proponents of psychogenic disease can hide, and have with MS on occasion, is the claim its not only a physical disease. The argument shows that...

An old claim was about one in four. However this was entirely anecdotal I think. How would this even be calculated or recorded? We still need that diagnostic test.

That might be the new kind of OI I was referring to. I have talked with other patients with severe OI who keep testing normal on the tilt table.

I was diagnosed with orthostatic intolerance, NMH, or neurally mediated hypotension, in the late 90s. I have lots of stories. During that tilt table test I flatlined and had to be revived. NMH has bradycardia, not tachycardia, which means as blood pressure falls the heart beats less, so causing...

In people who are not diabetic nor pre-diabetic, low insulin from not eating tends to drive the hormone glucagon. It tells the liver to make sugar while you are fasting, and it usually does this from glycerol. However I suspect that in us lactate is a sometimes a more important source. For...

Back in the 90s there were experimental robotic surgeons that were better than real surgeons on very specific surgeries, not general surgeons, according to what I was hearing in the AI community. However there was a huge issue that was not resolved at the time - if something goes wrong, who has...

Over the years my incapacities have varied in type and severity. There is no simple linear scale. Something based on points, and a very long list of possible issues, including in very severe and very long term patients, might be required.

Mild ME is brutal in comparison to many things people think about. Sub-clinical ME might fulfil a mild category, but keep in mind that in many discussions mild means a loss of more than half of functional capacity. Losing half a life is not mild in any reasonable standard.

POTS is not the only form of OI, but its a start.