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Ah saw the tweets but shared the thread. Awesome. Thanks.

Thank you. That was my impression as well. Sadly!!

Was there anything new or potentially groundbreaking that stood out? There was barely any live tweeting on the first day?

Lets not forget the title of this thread. People are worried about the safety of the community.

Let's not forget that potentially unnecessary traveling for the very severe ME patients to another country for a scan where we don't know what cut offs are being used to determine CCI can have it's devistating effects as well. That's even before the surgery.

Well again Prof Todd Davenport definitely is knowledgeable enough about ME and CCI. So you're proving here exactly that CCI does have it's distinct clinical picture. That doesn't mean you can't have both ME and CCI simultaneously. Again distinct not overlapping

Thank you @JenB. Yes, there are many diseases that overlap with each other. So it's really not a matter of if there's an overlap in symptoms there won't be distinct symptoms for each condition. Otherwise we would never be able to separate any disease for that matter. I definitely mean “not...

Hi @JenB, How are you doing? In your tweet, and as Michiel previously mentioned (see page 10), you felt that the fact that ME and CCI have symptoms that are distinct from one another was "simply untrue" I wondered about that as well. Although PEM/PENE is just one of the symptoms. As far as...

I like him. A gutsy researcher at Oxford! We need this. Yes!!

It's fantastic to hear that people have improved as much as they did It's admittingly and seemingly hopeful but as they say; safety comes first! Thank you @Michiel Tack and of course everyone else for providing us with the necessary information. Heroes! ♥️♥️

My main concern at the moment. Thank you!!

Very grateful for the information you provided!!

Indeed fantastic news that she's in a remission. Amazing!! On the downside it's a little confusing for my brain fogged living in the dark severe ME self.

Oh thanks. Amazing. ☀️

Sadly have to pay!!

Note that van der Meer is a good friend of Peter White and a CBT promoter.

Haven't seen anyone on Twitter getting excited or having a response from Metformin with Fibro. Hmmm.

My liver values were slightly elevated. My GP just felt it had to do with me being overweight. Haven't seen her in 6 years so I don't know how she knows. Don't tolerate meds or sups. Even crumbs.

In 2016 I had some contact via Twitter with Mr. Vrijhoef. He was going to come to the screening of the Forgotten Plague. He clearly has an interest in the subject. He sometimes retweets some of my blogs and other stuff.

Thank you for your answers. In a crash but very helpful!!! Brainstorming ❤️