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  1. Grigor

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Yes, I'm going to try some of that stuff! Hope I can tolerate it!
  2. Grigor

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Could be. I just copied and pasted it!
  3. Grigor

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    I was getting a bit down. No treatments etc. This bit lifted me back up! "Davis - Treatments being assessed by nanoneedle MS drug Copaxone - turns electrical impedance normal in nanoneedle Davis lab actually making the drug to use in experiments. SS31 repairs mitochondria, binds to...
  4. Grigor

    Dutch TV psychiatrists critique PACE

    Hi everyone, A prominent Dutch psychiatrist Bram Bakker has written a book where he published a critical chapter about PACE, CBT/GET and pro Mark Vink. I can't post the whole chapter here but it would be great if you could help me retweet the quote I posted so it gets the attention it needs...
  5. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    There's now a top Dutch neurosurgeon (not sure if I'm allowed to mention his name) who will operate someone and will, as far as I know, conduct a study on a few patients for over a couple of years. Sadly it won't be covered with the indication of CCI and ME.
  6. Grigor

    Researcher Interactions Question collection thread for S4ME Q&A with Dr Karl Morten, University of Oxford, Sept 2019

    What has surprised him the most while working on ME vs his other work?
  7. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Very.....
  8. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Quite worrying that he wants to travel to Spain in his condition. These patients are they cured?!
  9. Grigor

    The Psychosomatic Approach to Primary Chronic Rheumatoid Arthritis. (1965) Ehrlich

    Are there any studies or just articles describing these surgeries? How inadequate they were?
  10. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you for sharing. I'm too ill to get tested so I don't really need to worry about it for myself but I do worry for others!
  11. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Is there a link where you posted it? I would like to read it if that's possible. Thank you in advance.
  12. Grigor

    Predictors of New Onsets of Irritable Bowel Syndrome, Chronic Fatigue Syndrome and Fibromyalgia: The Lifelines Study, 2019, Monden et al

    Rosmalen who was part of the Dutch Health Council committee that wrote an advisory report on ME/CFS, refuses to adhere to its conclusions (ME/CFS is a chronic complex multisystem disease). Keeps calling CFS a functional somatic syndrome.
  13. Grigor

    The PACE trial video series by A Broken Battery

    Let me know. Otherwise I can ask on my page as well.
  14. Grigor

    Sci-hub blocked in Sweden

    Just download, install, sign up and push play. As far as I know (don't take my word for it) they won't be able to track you so that's a good feeling. https://windscribe.com/
  15. Grigor

    Sci-hub blocked in Sweden

    I used Windscribe VPN to bypass anything my ISP prohibits. Scihub works but when it doesn't VPN is great.
  16. Grigor

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    https://www.sciencedaily.com/releases/2019/04/190409093725.htm
  17. Grigor

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    I would also love to know what he says. Really excited about the fecal transplant.
  18. Grigor

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Ugh that sucks!!!! Such a pity!!
  19. Grigor

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    Well done on the draft so far!! Thank you @Michiel Tack @JenB and @Jeff_w.
  20. Grigor

    A general thread on the PACE trial!

    It's not the therapy!! It's the patient!! https://www.ncbi.nlm.nih.gov/pubmed/15784798
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