Search results

  1. Grigor

    Protocol Faecal microbiota transplantation (FMT) in Norwegian outpatients with mild to severe ME/CFS: protocol (...), 2024, Skjevling et al. Comeback Study

    Looking forward to the results. Can we please have a positive trial, but I'm preparing myself for the worst...
  2. Grigor

    Nature article: 2023 Your brain could be controlling how sick you get — and how you recover

    I would love to but I don't think my English is good enough to be published anywhere. I did have some additional comments about it as I wrote about cancer research and positivity here as well. https://anilvanderzee.com/can-positivity-cure-any-disease/
  3. Grigor

    Nature article: 2023 Your brain could be controlling how sick you get — and how you recover

    The article seems to be pushing the positive emotion idea, but they also talk about the study by Spiegel et al. from 1989, but in 2007 it failed replication. It's strange that this wasn't mentioned. Quite a biased and harmful piece in my opinion...
  4. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I personally also try to keep an open mind about it as much as possible, but I just have real issues with the surgeries with so little to no evidence base in regards to it also treating ME symptoms. Although those who have been advocating for CCI and such now say that the surgeries aren't for...
  5. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks again. It's indeed very sad to see. I have to admit though that the whole CCI stuff is not as alive anymore. There were also very few discussions or complaints online when I replied on Twitter when I posted the letter by Forward ME and an article showing the complications after surgery. I...
  6. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you so much Trish. Quite shocking she's suggesting buying a collar from Amazon... I'm laughing but really out of disbelief...
  7. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    The last video about the treatments including surgery. I can't watch it but probably no mention of the lack of evidence base in relation to ME.
  8. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    There's a new video by Gez Medinger about the topic. Next one will be about treatments and such...
  9. Grigor

    The Link Between Empty Sella Syndrome, Fibromyalgia, and CFS: The Role of Increased Cerebrospinal Fluid Pressure (2023) Hulens et al.

    I find it quite interesting. Lots of it fits how I experience aspect of ME but I'm not too impressed with the review itself.
  10. Grigor

    Hermesdorf Award for Chantal Bleeker-Rovers (BPS researcher) her Covid/post-Covid work

    She's also a coauthors of the protocol for long-covid CBT by Hans Knoop et al. https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-021-05569-y She's also an author of the CBT study for Qfever. I'm not sure since when she's actually an ME researcher.
  11. Grigor

    Post-COVID-19 Syndrome is Rarely Associated with Damage of the Nervous System: ..., 2022, Fleischer et al

    For those who understand German. An article by Christiana Berndt who takes a critical look at the study as well.
  12. Grigor

    Patient-led Research Collaborative and Fund for Long COVID

    The spine surgeries. Yikes... Here is some information about the stenosis surgery. One technique seems to be a fusion... https://med.virginia.edu/neurosurgery/services/spine-surgery/cervical-stenosis/ I'm wondering how they'll control for a placebo effect? If it's a fusion surgery they...
  13. Grigor

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Around 2.50 dr. Beate Jaeger claims that the treatment is effective for about 80 to 90% of the patients. Bold statements and claims.
  14. Grigor

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    2022 ASAP Chiari & Syringomyelia Conference Chicago, IL Title: Craniocervical Fusions: Revisions Speaker: Paolo A Bolognese, MD In this 2022 presentation, he talks about CCF Complications & Revisions. He starts by addressing a paper that came out in 2021 from Turkey that scared people as...
  15. Grigor

    Book: 'Long Covid Handbook' published, Oct 2022

    The bit about trauma, type A personality can be read here. In my opinion it's pseudoscience. Not very helpful...
  16. Grigor

    Can psychiatry make medicine better? Michael Sharpe, 29 Nov 2022

    "Make medicine great again".
  17. Grigor

    A new clinical challenge: supporting patients coping with the long-term effects of COVID-19 2022 Goldberg et al

    Great paper. This all seems like obvious stuff to us, but this type of guidance for MHP is still very much needed. Well done to the authors!
  18. Grigor

    [Preprint] Severe fatigue in long COVID characterized by inc inflammatory genes in monocytes, proinflammatory cytokines & CD8+ T-lymphocytes, 2022

    To give a bit of context. Hemmo Drexhage was also part of setting up the research program for ME by ZonMw. He is interested in the similarities between auto-immune and mental health diseases on an immunological, neurological basis. There's a strong focus on the microglia in his work. I'm...
  19. Grigor

    Post-COVID-19 Syndrome is Rarely Associated with Damage of the Nervous System: ..., 2022, Fleischer et al

    I just read this interview. It's really terrible... https://www.google.nl/amp/s/www1.wdr.de/nachrichten/themen/coronavirus/long-covid-corona-behandlung-psychologisch-100.amp?espv=1
Back
Top Bottom