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Long thread from Zeynep

This is a deeply reported article. One criticism is that the author didn’t do enough to equate the “core” LC symptoms to MECFS. Hardly mentioned at all until the very end. I agree that Al Aly’s definition of LC is far too broad.

Influential studies from the VA St. Louis take a broad view of long Covid. Not every expert agrees with the approach. https://undark.org/2024/07/25/long-covid-clash-of-definition-study-design/

Clip posted here https://www.s4me.info/threads/usa-the-recover-initiative-long-covid-research.30525/page-9#post-544911

It ended {no it didn’t} didn’t miss much—covered the basics—Jaime did pretty well in my opinion. Actually it’s still going on now—my bad. Only Jaime Seltzer segment ended

Well I tried to register but it told me I was too late—bah humbug. You can still watch it live here. https://www.washingtonpost.com/washington-post-live/2024/07/25/looming-public-health-challenge-long-covid/ I think you needed to register only if you wanted to ask questions.

With Jaime Seltzer, Aly Register here https://www.washingtonpost.com/washington-post-live/2024/07/25/looming-public-health-challenge-long-covid/

Possibly/probably Daratumumab. https://en.wikipedia.org/wiki/Daratumumab But I agree with you that it is much more helpful to specifically call out specific treatments by name, even if there is some speculation involved.

https://www.nytimes.com/2024/07/24/health/progeria-dna-base-editing.html?unlocked_article_code=1.9k0.q4xC.Uw4NrJXPahro&smid=url-share A disease that affects a couple dozen people worldwide gets closer to a cure……if only Francis would have had his lab investigate a disease that affects more people….

The baseline IGG data by responder data for cyclophosphamide which was included in the Rekeland dissertation was not included here. Also the HLA risk alleles data are not discussed at all here.

https://www.learningdisabilitytoday.co.uk/news/national-autistic-society-says-autism-cure-study-is-deeply-insulting/ The National Autistic Society has slammed a ‘deeply insulting’ new study that was published in the national media this week claiming that autism can be ‘reversed’.

From Chat GPT video summarizer (not sure how this works, but it works!) ### Summary of "Prof. E. Wesley Ely: Immunomodulation in Long Covid (Day 1, Block 4)" - **Introduction and Speaker Background**: - Dr. Wes Ely, a leading internist, pulmonologist, and critical care physician at...

Immunomodulation in Long Covid Haven’t watched yet.

This is the drug. To achieve this goal, we administered a neutralizing IL-11 antibody (X203) or IgG control to aged mice and studied healthspan indices29,38(Fig. 3a). Anyone know what X203 is?

If anyone has specific comments on this trial design/protocol, you can post here, and I can forward to Jaime—I don’t think this train has left the station yet.

CAR-Ts sweep into autoimmunity https://www.nature.com/articles/s41587-024-02321-0

Pretorius on editorial board… that’s why they are submitting there… doesn’t inspire confidence actually. Editorial Board Victor Aboyans, MD, PhD, FAHA, FESC, Department of Cardiology, Dupuytren Hospital and Limoges University, Limoges, France Professor Yehuda Adler, MD, MPH, Faculty of...

Cardiovascular Diabetology???

From email from Jaime Seltzer: “I'm helping with that trial! Outside of my involvement, though, there is nothing to say that if you took the money from that trial it would automatically go towards something similar or better. This is one of many grants that received funding, and if Ely's...