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  1. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Was this posted yet? From Invest in ME
  2. J

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Merged thread The Sick Times Q&A: NIH Director Dr. Monica Bertagnolli on next steps for RECOVER, future Long Covid research plans, and more https://thesicktimes.org/2024/08/13/qa-nih-director-dr-monica-bertagnolli-on-next-steps-for-recover-future-long-covid-research-plans-and-more/
  3. J

    Well-known, famous people with Covid-19 and Long Covid

    Dave Navarro https://www.rollingstone.com/music/music-features/dave-navarro-janes-addiction-reunion-1235075416/
  4. J

    Writers needed to debunk pseudoscience—paid

    Colin Wright @SwipeWright I need writers for @RealLastStand to help debunk popular narratives with data and facts. Any topic is fair game. The goal is to dispel pseudoscience and ideological nonsense. With over 45K subscribers, your work will reach a large audience. And I pay my writers!
  5. J

    Review Long COVID science, research and policy, 2024, Al-Aly, Davis, McCorkell, Iwasaki, Topol+

    Wow. If 400 million people have Long Covid then 50%, or 200 million people, have ME. This is up from the 24 million pwME pre-pandemic. If people with ME had not been neglected & dismissed for decades, hundreds of millions would have effective treatments or not gotten it at all.
  6. J

    Trial design for drug trials for ME/CFS - discussion thread

    I think anecdotally a lot more people find benefits from LDA than LDN. The LDA FB group has like 5k members. LDA can take you from Bell 30 to Bell 90– see here https://forums.phoenixrising.me/threads/pramipexole-put-my-cfs-me-into-remission.92410/ LDN doesn’t do that.
  7. J

    Review Long COVID science, research and policy, 2024, Al-Aly, Davis, McCorkell, Iwasaki, Topol+

    Really happy that Ziyad’s citation count will increase with this paper—is there any other point to this paper? 30 self-citations here—great job Ziyad! 400 million people with “Long Covid”. At least they didn’t claim that 400 billion people had Long Covid, because that would be a lot!
  8. J

    Molecular mimicry in multisystem inflammatory syndrome in children Bodansky et al 2024

    https://www.ucsf.edu/news/2024/08/428176/scientists-get-bottom-covids-worst-pediatric-complication Scientists Get to the Bottom of COVID’s Worst Pediatric Complication
  9. J

    Molecular mimicry in multisystem inflammatory syndrome in children Bodansky et al 2024

    Abstract Multisystem inflammatory syndrome in children (MIS-C) is a severe, post-infectious sequela of SARS-CoV-2 infection1,2, yet the pathophysiological mechanism connecting the infection to the broad inflammatory syndrome remains unknown. Here we leveraged a large set of samples from...
  10. J

    Use of antidepressants for/with ME/CFS?

    Only comment is that Effexor has a very short half life—like 4 hours—so it’s always like you are on the verge of withdrawing.
  11. J

    Very Wealthy people’s charities — News, Advocacy Ideas etc.

    https://www.nytimes.com/2024/08/04/business/bill-gates-warren-buffett-friendship.html?unlocked_article_code=1.AU4.C8Yn.PCXZHr_ygJek&smid=url-share Has the Long Friendship of Bill Gates and Warren Buffett Reached Its Final Act? Growing tensions between the two billionaires, over issues both...
  12. J

    Long Covid Defined, Ely et al. 2024

    https://www.nejm.org/doi/full/10.1056/NEJMsb2408466 No abstract. “BOX 1. 2024 NASEM LONG COVID DEFINITION* Long Covid is an infection-associated chronic condition that occurs after SARS-CoV-2 infection and is present for at least 3 months as a continuous, relapsing and remitting, or...
  13. J

    A Blood Test Accurately Diagnosed Alzheimer’s 90% of the Time, Study Finds

    https://www.nytimes.com/2024/07/28/health/alzheimers-blood-test.html?unlocked_article_code=1.-00.wKVK.Z1qdgfAS0lSy&smid=url-share It was much more accurate than primary care doctors using cognitive tests and CT scans. The findings could speed the quest for an affordable and accessible way to...
  14. J

    Very Wealthy people’s charities — News, Advocacy Ideas etc.

    Khosla—curing MECFS, which his daughter has is not included in the video. I turn seventy in the next six months and since I have everything I could possibly need, especially my family, I am really excited to be on the following mission for the next twenty years! Besides, I think you grow old...
  15. J

    Melinda Gates resigns from Gates Foundation

    Melinda French Gates Is Ready to Take Sides https://www.nytimes.com/2024/07/28/magazine/melinda-french-gates-interview.html?unlocked_article_code=1.-k0.TsG8.ujK5Fd0y2PyF&smid=url-share
  16. J

    Long Covid: Where Things Stand: Washington post live show, July 25th 2024, 9AM USA East Coast time

    That she thought everything went really well with the program…that was it.
  17. J

    Looking for Long Covid: A Clash of Definition and Study Design

    I didn’t see this as a hit piece..I thought it was pretty balanced.
  18. J

    Long Covid: Where Things Stand: Washington post live show, July 25th 2024, 9AM USA East Coast time

    Speaking of Al Aly, please see this link for an article outlining some in-depth criticism of his research. https://www.s4me.info/threads/looking-for-long-covid-a-clash-of-definition-and-study-design.39519/
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