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  1. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    A good strategy BEFORE hiring a “scientific director” would be to read their resume and then to read all or most of the publications they list on their resume. People on selection committees might conclude that a certain candidate might not be a good fit for scientific director if they did the...
  2. J

    Aripiprazole - Abilify

    I had withdrawals but others did not.
  3. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    CoRE: a new clinic at Mount Sinai providing innovative care for LongCovid, Lyme+ and related conditions https://polybio.org/polybio-mount-sinai-collaborators-open-state-of-the-art-center-for-patients-with-long-covid-and-related-conditions/ Going backwards.
  4. J

    A call from patient-researchers to advance research on long COVID, 2024, Fitzgerald et al

    Is there a free link to the whole paper? I clicked the link for the whole issue but don’t see the article.
  5. J

    ME and PEM recovery via Cyclophosphamide (personal story)

    I don’t agree with the use of SF 36 10 physical function questions. I basically score 90 on the 10 PF questions so I would score as not disabled or normal. The problem for me is that the disabling aspect my disease is brain fog, and general fatigue/vitality. So using the 10 PF questions on me...
  6. J

    USA: The RECOVER Initiative - Long Covid research

    Friendly reminder that TNX 102 is simply sublingual Cyclobenzaprine. This won’t cure anything.
  7. J

    Mechanisms of long COVID and the path toward therapeutics, 2024, Peluso et al

    I think Peluso and Al-Aly are dueling to see who can make the longest and useless “Long Covid” review paper. This masterwork barely mentions ME/CFS.
  8. J

    ME and PEM recovery via Cyclophosphamide (personal story)

    @siobhanfirestone Did you have disrupted/crappy sleep as one of your ME/CFS symptoms? If so, did your sleep normalize/improve after taking cyclophosphamide?
  9. J

    A Network Medicine Approach to Investigating ME/CFS Pathogenesis in Severely Ill Patients: A Pilot Study, 2024, Hung, Davis, Xiao

    Agree. Also could highlight the specific therapeutic targets in the abstract, and the last sentence of the abstract isn’t needed.
  10. J

    Alzheimer’s scientists and falsified data

    These fabricated papers have collectively accrued over 180,000 citations, exerting a gigantic influence on Alzheimer’s and Parkinson’s research. Much of the research pipeline may be resting on a house of cards. You should read the Science article because this is a really bad situation.
  11. J

    Stem cells reverse woman’s diabetes — a world first

    Seems like China is winning. I’m glad they are moving beyond endless acupuncture studies.
  12. J

    Alzheimer’s scientists and falsified data

    Merged thread Neuroscientist Eliezer Masliah found to engage in scientific misconduct; 132 of his papers fall under suspicion This is bad. Article is worth reading. https://www.science.org/content/article/research-misconduct-finding-neuroscientist-eliezer-masliah-papers-under-suspicion
  13. J

    Drug-induced change in transmitter identity is a shared mechanism generating cognitive deficits, 2024, Pratelli

    https://medicalxpress.com/news/2024-09-cognitive-deficits-meth-pcp-generated.html Cognitive deficits from meth and PCP use are generated by a common neurotransmitter switch, neurobiologists show
  14. J

    Drug-induced change in transmitter identity is a shared mechanism generating cognitive deficits, 2024, Pratelli

    https://www.nature.com/articles/s41467-024-52451-x Wonder if this is similar to MECFS brain fog? Treated by clozapine. Abstract Cognitive deficits are long-lasting consequences of drug use, yet the convergent mechanism by which classes of drugs with different pharmacological properties cause...
  15. J

    Recover Long Covid workshop Sept 23-25

    #RECOVER #LongCOVID Treatment Conference - that's the kind of creative approach RECOVER needs IMO. Why did RECOVER not assess LDN, Mestinon, Oxaloacetate, Rapamycin, monoclonal antibodies, checkpoint inhibitors - and at least do small trials.
  16. J

    Recover Long Covid workshop Sept 23-25

    This person tweeting again today
  17. J

    Recover Long Covid workshop Sept 23-25

    Starts again in about 20 minutes—enjoy!!
  18. J

    Recover Long Covid workshop Sept 23-25

    Cort also tweeting
  19. J

    Recover Long Covid workshop Sept 23-25

    I’m registered but not watching—2 reasons. 1-A relative is visiting 2- I don’t want to get triggered by hearing people who haven’t read the MECFS literature and are just reinventing the wheel.
  20. J

    Recover Long Covid workshop Sept 23-25

    This person is live tweeting
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