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They are just going to waste a sh*tload of money that could be used to fund something useful.

Why do this since Simmaron is also doing a trial?

This person (25M) went from being bedridden with severe #LongCovid and PEM for 2.5 years to playing basketball within a few weeks of starting Rapamycin! It cured his PEM. Apparently a Rapamycin clinical trial will also start in the US come January.

Why read the existing literature when you can re-invent your own wheel!! Everybody with their own wheel!

@Trish @Hutan could you please make a separate thread on the BioBS/BPS topic from the posts here as these are not directly relevant to Tullers fundraising—thank you!

Agree. Now we got Khosla Ventures and Google (and partially Steven A Cohen*). It’s a start. * funding some more dubious stuff https://www.s4me.info/threads/core-long-covid-lyme-and-related-conditions-clinic-at-mt-sinai-hospital.40605/

https://silc.org/our-work/ Also posted under a different thread by @Dakota15 What We Do The human and economic impacts of Long Covid are far-reaching, ongoing and devastating for patients, their families and their communities. The complexities of Long Covid—that it requires multiple...

Fair enough. I guess my concern is that the BPS stuff is obvious BS—whereas the BioBS stuff is shrouded with the air of respectability, as in this is “real science”, which in my opinion makes the BioBS stuff more pernicious.

Similar issue in Norwegian language? https://www.s4me.info/threads/news-from-scandinavia.647/page-95#post-526025

@dave30th Bumping my earlier post in this thread regarding the Long Covid treatment center at Mount Sinai (USA) that is promoting unevidenced treatments. ——————- Possible for you to do a {skeptical} deep dive into this Long Covid treatment center that your friend David Putrino is spearheading...

Ron and I spent several days last week with Rob Phair and Amanda Ooi, who does experiments in the lab, in Salt Lake City with the great scientists there who are working on the itaconate shunt theory and finding ways to block it. 1/2 Janet Dafoe Ron and I have made a video updating everyone...

@dave30th Possible for you to do a {skeptical} deep dive into this Long Covid treatment center that your friend David Putrino is spearheading. Your other friend Jo Edwards is not very keen on the approach. Thank you. Thread here...

Dr. Maayan Levy joins the Arc Institute as an Innovation Investigator, with a Stanford Pathology appointment expected in January 2025. Her work on viral persistence and serotonin reduction in #LongCovid remains highly impactful. probably goes under the Arc thread.

From Sick Times article: “If this becomes a location clinic for every Long COVID patient in the world, I would say that our mission has failed,” Putrino said at the conclusion of the opening event last week. “This, I hope, is the clinic that’s going to launch a thousand clinics.” Hmmm…

In this article, @PutrinoLab responds to a patient who attended their facilities and dealt with unmasked staff by suggesting it must have been people in another office This is dishonest. I learned about this incident and informed him at the time. It was his own staff…

It's psuedoscience--see Jo Edward's post above.

I guess my feedback wasn’t taken into consideration.

Yes, agree that cognitive disturbances should be included as this symptom disables most people with ME/CFS.

“People with ME/CFS say they do not have fatigue in its usual sense(s). “ I have fatigue/tiredness/exhaustion/lack of energy in what I believe is the usual sense.