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Although this forum is highly focused on the nonsense of the BPS brigade, I submit that at this point what I call BioBS, or the low quality ME/CFS & "Long Covid" research is much worse overall for the patient community. Why? 1. Although historically BPS had a lot of "scientific" backing, it...

Long a ‘Crown Jewel’ of Government, N.I.H. Is Now a Target The agency long benefited from broad bipartisan support. But Republican criticism has intensified, and new choices for top health posts hope to upend the organization...

Moved post FWIW, some patients have experienced reduced brain with Fycompa Low dose fycompa (2mg) was a game changer for me for reducing „brainfog“ and migraines.

https://www.medscape.com/viewarticle/new-data-most-promising-treatments-long-covid-2024a1000lm5 No need to read this—I promise! (Might need to logon to medscape).

Honestly, I'd much have a treatment than a lot of publications. Treatments are the correct metric (for me), not publications. Preparing high quality manuscripts for publication takes a lot of time, and is not always the best use of their time, especialy if there are not significant findings...

Open medicine foundation because it’s an international multi investigator multi center organization. I think he is aging at the same rate we all are! Laurel Crosby can definitely spearhead the BH4 work, and if Ron were to leave us, the various collaborations (University of Utah?) would...

It’s not a good drug candidate. https://www.s4me.info/threads/wasf3-disrupts-mitochondrial-respiration-and-may-mediate-exercise-intolerance-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-hwang-et-al.34776/page-5#post-489247

https://onlinelibrary.wiley.com/doi/10.1111/joim.20033 Abstract Background Bacillus Calmette–Guérin (BCG) injected during the COVID-19 convalescence period was safe and enhanced recovery from anosmia and dysgeusia in the acute phase. Objectives To report the long-term results of the BATTLE...

Do you recommend reading this or will it just make my blood boil?

Stop RFK war room is launched https://www.politico.com/live-updates/2024/11/18/congress/health-groups-aim-to-stop-rfk-00190215

Lunatic anti-vaxxer RFK, Jr. says hes going to immediately STOP the DEVELOPMENT of NEW DRUGS for cancer, Alzheimers and other illnesses,... for eight years.

The good news keeps on coming! Jay Bhattacharya, an NIH critic, emerges as a top candidate to lead the agency https://wapo.st/3Z79RZM

Answer: No

And of course the worst has come to pass…..

https://www.nytimes.com/2024/11/12/health/robert-kennedy-jr-fda.html?unlocked_article_code=1.ZU4.qCQ_.6_cbG3x2rUzV&smid=url-share Kennedy’s F.D.A.Wish List: Raw Milk, Stem Cells, Heavy Metals

https://www.nature.com/articles/d41586-024-03647-0 Virologist Beata Halassy says self-treatment worked and was a positive experience — but researchers warn that it is not something others should try.

Whitney Dafoe @DafoeWhitney I have a severe iron deficiency. There is a nationwide shortage of the one brand of iron infusions my insurance will cover. They won't cover the other brand. That brand costs $1800 per infusion. In Germany, an iron infusion costs €8. WTF is wrong with this country...

Robert F. Kennedy Jr., Foe of Drug Makers and Regulators, Is Poised to Wield New Power President-elect Donald Trump has encouraged him to “go wild on health” but has not made clear what role Mr. Kennedy will play...

Moderation note: Please note the title of the thread and keep on-topic. Restrict your posting to information that is highly relevant to ME/CFS and Long Covid. Consider our rules, particularly this part of Rule 11, before posting: ******* Not good. https://wapo.st/3UEZWaZ Florida surgeon...

It’s a preprint.