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Why do so many of these fully recovered people become “wellness coaches”? There are so many careers to choose from….

Yeah, some interesting comments, including some on “Long Covid” and Lyme. Have to say that I’m not particularly optimistic about any new candidate drugs in the pipeline. I posted about the Vertex drug here (not different from placebo)...

Good in depth article—mentions fibromyalgia. https://www.nytimes.com/2025/01/12/magazine/chronic-pain.html?unlocked_article_code=1.ok4.Ggyl.jPE4qqT8991M&smid=url-share

“All this” referring to the psychobabble program or to Nancy Klim*s’ cutting edge research program?

Bumping this thread so people see this. Strange stuff, probably something like Lightning Process. “Institute of Neuro-Immune Medicine Embraces Mind/Body Approach Lastly, Dr. Klimas didn’t mention it, but an email today indicated that the Institute for Neuro-Immune Medicine is branching out and...

Merged thread “What’s Up, Doc?” Nancy Klimas on Viruses, ME/CFS’s Greatest Need, and Her ME/CFS Clinical Trial—Cort Johnson https://www.healthrising.org/blog/2025/01/10/klimas-ebv-clinical-trials-chronic-fatigue-syndrome/ Lot of stuff in here—most of it not my cup of tea. NK has been talking...

Even though this is a review article it still would be helpful to have some data in the abstract to demonstrate how highly disregulated the metabolism is.

ALS got huge amounts of funding from the ice bucket challenge—like $115 million— these people didn’t have ALS. https://en.wikipedia.org/wiki/Ice_Bucket_Challenge

Maybe—he tweets about RFK Jr type stuff—dangers of seed oil, plastic chemicals in food, etc. I can’t DM him because I don’t have a verified x account, otherwise I would.

I think there are 2 issues—not directly addressing OP question. 1. Do small donations matter? A google search says yes. E.g. https://neonone.com/resources/blog/small-donations/ 2. Big donations definitely matter hugely. In the USA, Vinod Khosla and Steven A Cohen...

TECH SAVVY ‘Mystery sickness’ left me laid up in bed & on my computer…now I’ve I turned my skill into £4.5BILLION tech firm He is now third in the 'young' rich list, with only the Duke of Westminster and Lady Wellesley ahead of him...

Why wasn’t there any post-Covid EL? Why haven’t we heard of anyone being diagnosed with EL in the last twenty years or so?

Important read on Jay Bhattacharya's NIH nomination and why it's very bad. (And if you think the author is a "leftist," you are so barking up the wrong tree. https://socialimpurity.substack.com/p/lets-talk-about-merit-again

Spitting into the wind…

Does anyone know how to score the DSQ SF test? https://www.leonardjason.com/wp-content/uploads/2021/05/DSQ-SF.pdf ETA: guessing that you add together the scores for the first 14 questions in the frequency and severity columns.

Ugh. It’s an antihistamine.

Observation, NOT a judgement. With respect to the HR remission account, if the patient was so severe, and frequently couldn’t eat, speak or move, how did they manage to have and raise 2 kids during the time they had MECFS?

“Informed consent was obtained from the patient to publish this case report.”

Seems like there are more adverse reactions with IV than subQ https://www.pharmacytimes.com/view/pharmacy-department-driven-initiative-to-reduce-subcutaneous-daratumumab-observation-time

6mg doxepin would wipe me out. Try a lower dose initially.