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https://www.keystonesymposia.org/conferences/conference-listing/meeting/onpage-program/f12026

Very exicited to be heading to Keystone Symposium on #LongCovid in Santa Fe to represent @patientled !Aside from leading researchers, there will be good # of pharma (Pfizer, J&J), & handful NIH folks.Send me any questions / intel requests / asks & will read by Sunday! Anyone on X who could...

This part is not unique to ME/CFS though. Do a quick google search for Alzheimer’s or MS and there are dozens of non-bogus, but likely overhyped articles on treatments, biomarkers, preventative steps to take, etc. (This week Alzheimer’s seems to be caused by low lithium levels, etc).

Cort Johnson article https://www.healthrising.org/blog/2025/08/07/younger-inflamed-brain-me-cfs/

cool paper. However, mice don’t have tonsils and their NALT doesn’t look anything like EBV infection for humans, so I’m just curious whether the model is really capturing human disease processes. Mice and I—neither have tonsils.

Thought it was interesting that they restored CNS homeostasis using microglia-like cells in mice, but fine to delete thread. Also it was related to another Sandhoff disease related paper I posted—but Sandhoff is clearly neuro degenerative but MECFS is probably not.

Whole-genome sequencing provides an unbiased and complete view of the human genome and enables the discovery of genetic variation without the technical limitations of other genotyping technologies. Here we report on whole-genome sequencing of 490,640 UK Biobank participants, building on previous...

Abstract As tissue resident macrophages of the central nervous system (CNS) parenchyma, microglia perform diverse essential functions during homeostasis and perturbations1. They primarily interact with neurons via synaptic engulfment and through the rapid elimination of apoptotic cells and...

What? I need my microglia replaced. Where do I sign up? This seems like Nobel Prize level stuff.

Abstract Migration of transplanted allogeneic myeloid cells into the brain following systemic hematopoietic stem and progenitor cells transplantation (HCT) holds great promise as a therapeutic modality to correct genetic deficiencies in the brain such as lysosomal storage diseases.1–3 However...

How does Epstein- Barr virus induce multiple sclerosis?The infection leads to B cells that get into the brain, attracting pro-inflammatory T cells (mouse model)

But they say to cite it as I pasted it above.

Abstract Epidemiological data have identified Epstein–Barr virus (EBV) infection as the main environmental risk factor for multiple sclerosis, the predominant autoimmune disease of the central nervous system (CNS)<a data-track="click" data-track-action="reference anchor" data-track-label="link"...

I think the author on the PP is “DecodeME collaboration (2025). Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome.”

Strange or not, SMC was the first hit that showed up on a google search.

SW quote here What Long Flu Sufferers of the 1918-1919 Pandemic Can Tell Us About Long COVID Today https://time.com/5915616/long-flu-1918-pandemic/

Is it typical to do press for a preprint?? Usually this happens when a paper is published. See here https://www.sciencemediacentre.org/wp-content/uploads/2019/11/Best-practice-guidelines-on-preprints-and-publicity.pdf

Do all celebrities have Lyme disease now? https://news.immunologic.org/p/do-all-celebrities-have-lyme-disease?utm_campaign=post&utm_medium=web

Fraudulent Scientific Papers Are Rapidly Increasing, Study Finds https://www.nytimes.com/2025/08/04/science/04hs-science-papers-fraud-research-paper-mills.html?unlocked_article_code=1.b08.6wdk.S7Bz3x-AcDR3&smid=nytcore-ios-share&referringSource=articleShare

Significance Numerous recent scientific and journalistic investigations demonstrate that systematic scientific fraud is a growing threat to the scientific enterprise. In large measure this has been attributed to organizations known as research paper mills. We uncover footprints of activities...