I have just submitted this complaint to Cochrane on behalf of the committee.
In brief, it's a complaint that we have not been informed of the outcome of our previous complaints, contrary to Cochrane's own complaints policy.
This also means we theoretically can't escalate our complaint to the...
Another stupid questionnaire study drawing false conclusions?
I suspect guaranteed financial and practical support would lead to a reduction in anxiety far more effectively than psychological therapy for many sick people.
Edit: Responding to an edited post
We should be wary of diagnosing someone's state of health on how they look on a short video clip. Many of us can look well when very ill. Think of how many of us are disbelieved by colleagues, clinicians, friends, even family we live with on the grounds that...
Hilda Bastian has just posted the following on her talkpage in response to some questions I asked there a few weeks ago.
https://hbprojecttalk.wordpress.com/2024/12/18/brief-message/
Coincidentally I'm expecting to submit to Cochrane tomorrow a further complaint from the committee about the...
As I understand it their protocols are about what sort of studies they will include, what they are going to use as the primary and secondary outcome measures, how the data from the studies will be combined and analysed etc. In other words it's a paper and mathematical exercise, not one that...
Cochrane doesn't do research on human subjects. It does systematic reviews of other people's published research. Therefore I can't see why they would have an ethics committee.
If anyone wants to check, Hilda's updates are archived here:
https://web.archive.org/web/20240415215657/https://community.cochrane.org/organizational-info/people/central-executive-team/evidence-production-methods-directorate/stakeholder-engagement-high-profile-reviews-pilot
Maat quoted this bit:
I responded:
It confused me. I've just checked and can see why. The quote was incomplete. It should have read:
So it seems the going back to the drawing board and reconfiguring the project refers to the preceding sentences about pandemic and restructuring, not to the...
I've done the poll. I ticked tired but wired (among other things) but it's not before bed, it's when I try to settle down to sleep and keeps me awake for hours.
To clarify, I knew because Hilda put it in one of her published updates that there had been a complaint that wanted the new review process stopped and took a year for Cochrane to decide on, during which the IAG were told to stop work, but the author group were allowed to continue. But i thought...
The team writing the Larun review are mostly based in Norway. I think we have discussed before whether they are subect to Norwegian FOI. I've forgotten the answer.
It's not just about the UK. The Australian new guideline process is happening and they have some Cochrane insiders fighting to retain GET, especially Paul Glasziou. No doubt other countries too.
You're right of course, but maybe you'd be surprised at how easy it is to make people feel pressured. Even just discussion of fundraising on a forum like this, where so many members are struggling just to get through each day and to have sufficient funds to eat and heat their homes, some people...
I don't think we can make assumptions about what anyone else can do. Lives are complicated. Some can, some can't, and none should be pressured into trying.
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