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That's my concern too. It sounds like one of those alternatives to prison sentences that courts hand out. :confused: The thing chronically ill people miss most is the ordinariness of normal life. The stuff that's dull when you're healthy, because you can't imagine not being able to grab a...

It's been discussed for more than 20 years, though I can't always vouch for the bit about knowledge. :D The most plausible conclusion I've seen is that ME/CFS is what's behind OI, not a separate condition like hypovolemia. That it's a common symptom of the syndrome, and it tends to improve...

Some of Omega's previous talks (including Karl Morten's event from last year) are up on YouTube, but this one isn't. Hopefully they'll put it up at some point.

Excellent, will look forward to that.

Even assuming that's true—and he makes it clear enough that it's his opinion, not evidence—they're still disorders. Right, so mental disorders aren't a problem that should be medicalised. Got where you're coming from, mate. Why do people pay actual money for papers that print garbage like this?

And me. The poll asks about 'still shielding', and I never shielded in the way that some extremely vulnerable people did: not leaving the house, needing people to test for infection before visiting, and wearing a mask even when visitors test negative. Before the vaccines came along, I reduced...

:( Wish I could say it was a surprise, but it isn't. The full side effects profile of a new med can take years to emerge, and if its action is significant enough to alter people's metabolism, the drug should probably be prescribed by a specialist initially. Other new drugs with potentially...

Very much agree, but I also wonder about the issue of timing. Ideally the PPI group should be involved before a grant application is even drafted. If it isn't, it could be more difficult to change some of the elements that are most important from the patients' point of view—outcome measures...

This gets to the heart of it. It would be easy to design a manipulative questionnaire that gives no opportunity to comment on the real questions and concerns, and to fulfil a PPI quota by finding enough unwary patients willing to fill it in.

The language issue really needs tackling by charities and advocates. Descriptive phrases like 'complex multi-system disease' are important because we need to talk how ME/CFS affects people—sometimes in shorthand—but they do need challenging for accuracy and effectiveness. This phrase is about...

I've genuinely lost count, but I'm pretty sure I haven't reached double figures yet! :laugh:

Almost none, as most of us have only a fraction of the social contact that most people do. We're probably more at risk of getting it than spreading it. As not many of us are able to work, we're at least able to isolate if we do get unlucky. We don't have the problem some in the workforce face...

It depends what it means, really. OTs do it as part of their work, but it's mostly about maximising movement efficiency by making changes to home and work environments. That sort of fatigue management is genuinely helpful. Most of it's basic common sense, but it's still really good to have a...

Britain has that climate most of the time, but we'd probably call about 60% of it the Really, Really Not Hot time of year. :D It is lovely to be able to sit outside.

I'm not fine about it, but there has to be a risk/benefit analysis as well as a response to other people's preferences. The only way I can think about risk/benefit is through my experience with Covid, which suggests I'm not at greater risk than anyone else my age. The downside of not masking...

I can't answer your question, I know nothing about pharmacology... ...but that's where I'd stop reading. Everyone has their own point of view, of course, but mine is that this kind of experimentation is for clinical trials, not individual doctors trying stuff out on patients. We don't really...

Don't give 'em ideas! :nailbiting:

It's hard to know whether something is happening that shouldn't, or something isn't happening that should. :confused:

My answer nowadays would probably be 'I mask where I might be a risk to vulnerable people, or where others prefer to mask'. It used to be 'I mask only in busy indoor spaces', but it's seemed a bit pointless since I went back to playing music in groups. I probably picked up both Covid infections...

There have been sleep studies, but I can't recall seeing much comparing it directly with other disorders. There appear to be several distinct patterns anyway, and the same people may experience all of them. The most consistent factor seems to be feeling like death dug up on waking, specially...