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  1. Kitty

    UK: Voting in government elections

    A reminder that if anyone in GB is struggling for general-purpose photo ID, a provisional driving licence is the cheapest at £34 if you apply online. It doesn't matter if you've no intention of ever driving, and like a passport they last for 10 years. As @Wits_End says, you don't need this kind...
  2. Kitty

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    The trouble with that will be the fairy folk, who swap our fuel tank every night for a different one. We wake up with no idea whether we've got a moped, a bus, a car, or a toy train that only moves if somebody pushes it.
  3. Kitty

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    I don't think there is. It reminds me a lot of driving a wheelchair-adapted van. They have to reduce the size of the fuel tank (invariably by an unspecified amount) to accommodate the lowered suspension, so you never actually discover what the dashboard indicator shows when you've only got a...
  4. Kitty

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    The second description seems to be more common, but people do use and understand terms differently. Rolling PEM is really common in mildly affected people. I had it almost continuously when I was working; I was exceeding my capacity every day during the week, and resting up at weekends just...
  5. Kitty

    How can you tell if a supplement brand is good one?

    B12 deficiency, plus low vitamin D if I don't supplement. (I might have the world's best skin type for vitamin D production, but it also means you get sunburn in England in March!)
  6. Kitty

    How can you tell if a supplement brand is good one?

    I've often consulted VeryWell, it is useful. For major brands it would probably be too much of a business risk to deliberately split production between tested and non-tested batches. I guess there are sometimes compromises made due to supply issues, but it takes a lot of work and a lot of money...
  7. Kitty

    USA Minnesota - Dr Tam

    That's impressive. Not as much as the old lady on my mam's estate who cut the chip out of her bus pass and glued it to a magic wand, but still.
  8. Kitty

    The causes that aren't genetic or pathogenic

    It's also muddied by the apparent existence of a post EBV-like group, who have significant symptoms but they do eventually resolve. There's still a major impact on their lives—six months to a year is quite long enough to lose your job or be forced out of a home you can't afford on sick pay—but...
  9. Kitty

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I've thought about this too, but I wonder if symptoms are part of the difficulty. What matters to me is what I can do. That's partly governed by how I feel, of course, but also by an assessment of current capacity and the likelihood of unspeakable payback. I think if I were keeping a record...
  10. Kitty

    The causes that aren't genetic or pathogenic

    You should definitely enter functional fungus and psychosomatic spoons for a prize in the Pompous Parsnips thread. :rofl:
  11. Kitty

    The causes that aren't genetic or pathogenic

    I feel the same, because there were also three of us (though not at the same time). Also, I have two close but unrelated friends that I've shared houses with, and we all developed ME (again, not at the same time). But there three or more cases of all sorts of other things as well, in both...
  12. Kitty

    The causes that aren't genetic or pathogenic

    AKA luck. I agree—it might turn out that there's some fascinating combination of events that are necessary, but it seems just as likely there aren't.
  13. Kitty

    In major dysmood disorder, physiosomatic, chronic fatigue and fibromyalgia symptoms are driven by immune activation and... 2024 Maes et al

    Is this interesting research from a respected team, or auto-generated from an immunology book, a psychology article in the People's Friend, and a Victorian novel? I'm having one of those days where I can't tell.
  14. Kitty

    Updates from the UK ME/CFS Biobank / CureME team

    I don't know, but it's possible it might not be a great deal in practical terms. I'm guessing universities in the UAE might have better resources in some respects? Knowing the poor pay and ever-increasing pressures faced by friends teaching in the UK sector, an institution abroad offering job...
  15. Kitty

    Complete remission with histamine blocker in a patient with intractable hyperadrenergic postural orthostatic tachycardia syndrome secondary to PASC

    It's dead helpful for cat allergy (for which I now have take it year-round, owing to adopting a kitten and becoming allergic to her three years later :rolleyes:) and hay fever. Not so much anything else, though.
  16. Kitty

    Opinion Appraisal of Clinical Practice Guideline: NICE clinical practice guideline for [ME/CFS]: diagnosis and management, 2024, Sarah Tyson

    The people I saw offered no therapies at all and had no connection with ME clinics. That may have been important. Their job was to look at individuals' needs. They didn't give me any sense of arriving pre-equipped with theories about what would be best for me based on my diagnosis; they...
  17. Kitty

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    If we separate post-exertional malaise from post-exertional effects (measurable changes after exertion), I dare say it'll have the support of folk whose PEEs include urinary output going from the pretty-ordinary to the frankly-bloody-ridiculous.
  18. Kitty

    American Psychosomatic Society no longer "Psychosomatic?"

    I think they're safe in that assumption. If the biological underpinnings of ME were discovered next week, I bet some of them would be totally unabashed. "Oh, we didn't mean that chronic fatigue syndrome." "It doesn't explain all cases, of course." "Well, it's what the scientific* evidence† was...
  19. Kitty

    To Live Past 100, Mangia a Lot Less: Italian Expert’s Ideas on Aging

    My auntie didn't like bananas and died at 93, so there you are. (I'm not keen on them either if I'm honest, so I won't be making old bones.)
  20. Kitty

    I keep going through the same thought processes without resolution

    I had a good example today of why postponing things to a random future date helps make decisions. The calendar ordered me to find and order some smart winter boots. :confused: I have a good quality pair already. They look like big chunky ski boots but are much lighter, they have a hidden zip so...
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