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That would seem to be the big "if".

I wish they'd tell us what bodily systems are dysregulated... ...and how they know this is happening, especially given that they don't appear to have read even the most rudimentary description of ME.

Hope the treatment goes as well as it can, Joan. However ropey it can be at times, there is at least an end date.

You'd keep both, I guess. But for someone who has ME/CFS symptoms that can be linked to Covid, I don't see why a qualified ME/CFS diagnosis couldn't be given. They need the same care, the qualification is only for research and statistical reasons.

I can see there may be an argument for this too, but I don't understand resistance to a single diagnosis of Covid-associated ME/CFS (or similar). Researchers who don't want post-Covid cases can still exclude them, those who only want post-Covid cases can include them, they would be tagged as...

It doesn't justify information about pwME being recorded via PROMs either. At review, patients should be allowed to focus on whatever is their main concern them at the time, whether it's the development of new symptoms, reporting back on attempts to manage particularly difficult symptoms, or...

That's a very particular way to present "people who recovered quickly didn't go to the doctor's".

This looks eerily like the 1960s/70s. If women complained too much, they were prescribed tranquillisers. I was given them for ME, my mother was given them because she had ulcers throughout her stomach, and a neighbour a few doors down was given them (without examination) for cervical cancer...

A very nice chap at one of the call centres (always cheers me up if I'm switched through to Preston, they seem to have some particularly helpful staff) explained that it's because it's decades old and doesn't really work. My PIP award has had to be extended twice—it expired in early 2022, and...

Me neither until it developed into actual incontinence, at which point they had to rule out bowel cancer. They seemed to regard really disruptive symptoms as being a bit like biting insects in summer—something you just have to put up with if you insist on leaving the house. I've had this...

That was the doctor's diagnosis, both before and after the intolerances were discovered, so yes—for better or worse, it's the term I use. People often manage IBS by making some dietary adjustments, and even where it doesn't solve the problem, it seems to help some.

For some people there are causes, it's just difficult to work them out. My IBS started almost overnight, but it turned out it was driven by losing the ability to digest two foods, cow's milk and potato starch. The milk intolerance was easy—I get stomach ache as well as bowel symptoms—but the...

I'm not sure what an exhausted immune system is. Even if it's a meaningful concept, it's probably not very useful in the context of PEM. Part of the PEM phenomenon does resemble some kind of immune response (sore throat, swollen glands, etc), but a common cold can do it a lot better. [ETA: and...

On this specific point, I wouldn't be against a measure / toolkit for newly diagnosed people, if they want to use one. I say this because I remember being diagnosed with ME. It was more than two decades into my illness, but even so there was so much I didn't understand. And after spending a...

I think it's okay, it's just magazine style with a sidebar. Haven't perused the contents very closely yet.

Only on Thursdays and Saturdays.

If it's true one of the major variables between groups (cognitive and physical fatigue) can't actually be measured, surely it isn't a valid exercise in the first place?

Dunno about a comedian, but I'd pay money to read Marina Hyde describing them and their attitude. Although Frankie Boyle might have some good words for them...

To be fair, I got quite a bit for assuming Excel must be able to calculate time, because it'd be ridiculous if it didn't. "I'd never have thought of scheduling on a spreadsheet!"—former boss, who still hadn't quite got over there not being a typing pool any more.

I'm beginning to think we need another study. So: Group A uses up however much of their available resources are required to fill in all this paperwork, whilst Group B does it the old-fashioned way—assessing and reassessing the constantly-moving target that is their functional capacity by...