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Congrats to everyone who made this happen. To me DecodeME is so much more than a big genetic study. It's about bringing ME/CFS research to the next level. There are also so many interesting side-projects and ideas. Just to quote a few things from the protocol: "Recruitment of a further 5,000...

Sad that they were only able to reach 5 patients.

I wonder how avoidance was defined in these 66 studies.

I think these papers would be taken less seriously if they were required to add the questionnaires they used...

If I understand correctly the score of item 3 is divided by 10 and for item 4 an average for all 15 symptoms is made so that all 4 items have a 0-10 scale and these are then added to a total score (0-40). In this study, patients scored an average of 24 while the controls had a score of 17. In...

If I understand correctly they used this scale, as defined in this paper from 1997: Schmidt NB, Lerew DR, Trakowski JH. Body vigilance in panic disorder: evaluating attention to bodily perturbations. Journal of consulting and clinical psychology. Apr 5 1997;65(2):214-20.

I wonder if studies like these ever get criticised by proponents of a psychogenic theory. Suppose you believe in such an explanation for POTS, you would be rather annoyed by studies like these that make overstatements and whose experiments have little to no relevance to the hypothesis in...

Anyone have access to the paper? Interested in how they measured 'somatic vigilance'. So they select patients for having symptoms while standing up and others who don't. Then they let them stand up for a while and notice that the first group is more tensed, anxious or has a higher heart rate...

Think it depends on what you want to do with it.

Think this is the official (and disappointing) response from the Austrian government: https://www.parlament.gv.at/PAKT/VHG/XXVII/SPET/SPET_00550/imfname_1422549.pdf

Thanks @LarsSG !

(Tried to make some overview but I haven't been following these estimates closely, so please correct me if I'm wrong): The US data show that 18.9% of adults who ever had COVID are currently experiencing long COVID. A previous ONS Survey from last year showed that "Among a sample of over 20,000...

Or they might underestimate how certain symptoms might be explained by something else than corona.

Interesting article, thanks for posting. Some more quotes: In 2004, our hospital [6] created an extensive interdisciplinary rehabilitation program for 50 severely impaired post-SARS patients. At the time I was the Medical Director and the Chief of Staff. The intensity and duration of the...

The dark psychosomatic history of peptic ulcer part II .... In this three-part series, we will explore the dark psychosomatic history of peptic ulcer. In part I we examined the reasons behind the popularity of psychosomatic explanations of peptic ulcer. In part II we will explore some of these...

Thanks for all the helpful replies!

With EMEC we are trying to set up a meeting with representatives of The European Federation of Pharmaceutical Industries and Associations (EFPIA). We are compiling a list of drugs that seem most promising for the treatment of ME/CFS and the pharmaceutical companies that make them. An example...

Walach (one of the authors of the homeopathy review) is the researcher who did that weird distant healing trial on CFS, discussed here: Effectiveness of distant healing for patients with chronic fatigue syndrome, 2008, Walach et al | Science for ME (s4me.info)

Thanks!

I'm a bit confused with the category: G93.39 Other post infection and related fatigue syndromes Why does it jump from G93.32 to G93.39 ad what is this category supposed to include?