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  1. ME/CFS Science Blog

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Do they really think that half of all young people who got infected with sars cov-2, developed Long Covid? Or am i misunderstanding something in the abstract?
  2. ME/CFS Science Blog

    Empathetic verification: covering ‘Long COVID’ in Norwegian newsrooms By Hanne Østli Jakobsen. 2022. Reuters Institute Oxford

    Perhaps that might explain some of the articles on ME/CFS that appeared in Aftenposten, like this one: Do not deprive ME sufferers of the opportunity for treatment that works (aftenposten.no) Zotero is a popular reference manager, a way for researchers to store publications and help with...
  3. ME/CFS Science Blog

    Nature - Online harassment: a toolkit for protecting yourself from abuse

    Frustrating. I wonder how much the author looked into the issue of ME/CFS. I think she might have simply been happy to have found another example to use in her article, rather than digging into it and see if what really happened. I fear that commenting or contacting them will only make us look...
  4. ME/CFS Science Blog

    Austerity and identity formation: How welfare cutbacks condition narratives of sickness, 2022, Altermark and Plesner

    I think it is useful that this study highlights these problems and how hard it affects people lives. Bit unfortunate that these scientific papers in sociology always have to frame their results inside a larger theoretical framework and focus on meaning, narratives etc. They all want to quote...
  5. ME/CFS Science Blog

    Austerity and identity formation: How welfare cutbacks condition narratives of sickness, 2022, Altermark and Plesner

    Warning: this is not a fun read, this content might be distressing for some patients. Some quotes from the study: "interviewees were recruited with the aid of the leading Swedish patient organisation RME (National Patient ME-association) [...] All participants in this study have been denied...
  6. ME/CFS Science Blog

    Somatic symptom disorder in patients with post-COVID-19 neurological symptoms: a preliminary report from the somatic study, 2022, Kachaner et al

    These seem to be the ten questions of the scale: Take from this study: (PDF) Validation of the Korean Version of Schedule of Fatigue and Anergia: General Physician Questionnaire (researchgate.net)
  7. ME/CFS Science Blog

    Somatic symptom disorder in patients with post-COVID-19 neurological symptoms: a preliminary report from the somatic study, 2022, Kachaner et al

    The whole SSD diagnosis is based on behaviors, thoughts and feelings "appearing disproportionate" to the symptoms patients experience. With Long Covid, where so much is poorly understood, that judgement is nearly impossible to make and an SSD diagnosis probably says more about the doctor than...
  8. ME/CFS Science Blog

    Predictors of Chronic Fatigue Syndrome and Mood Disturbance After Acute Infection, 2022, Sandler, Lloyd et al

    I'm a bit confused: is this a new statistical analysis of the data of the Dubbo study that has been published 15 years ago?
  9. ME/CFS Science Blog

    Predictors of Chronic Fatigue Syndrome and Mood Disturbance After Acute Infection, 2022, Sandler, Lloyd et al

    For overall illness severity, they report hazard ratios but for PFIS they report odds ratios.
  10. ME/CFS Science Blog

    Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in Australian primary care patients: only part of the story?, 2022, Orji et

    Good that they included a patient advisory board that notified them how difficult it was to get a diagnosis of ME/CFS and that this might have resulted in an underestimation of the prevalence. Otherwise, the results are rather similar to what we knew. 0.1% prevalence estimation (likely an...
  11. ME/CFS Science Blog

    Persistence of somatic symptoms after COVID-19 in the Netherlands: an observational cohort study, 2022, Ballering et al

    Agree it is quite absurd that we had to wait 2.5 years to get a decent epidemiological study on Long Covid. I doubt that the authors can be seen as biased in getting a low estimate. MUS and BPS proponents are usually not those who deny the existence of long covid (or ME/CFS). They usually...
  12. ME/CFS Science Blog

    Effects of the Prolong Life With Nine Turn Method (Yan Nian Jiu Zhuan) Qigong on Brain Functional Changes in Patients With CFS, 2022, Xie et al

    So either health psychology becomes more critical of their own evidence base and starts to conduct scientific experiments to test and improve the reliability of their trials and studies. Or quacks continue to exploits these weakness to promote their own pseudoscientific theories so that...
  13. ME/CFS Science Blog

    Response Shift After CBT Targeting Severe Fatigue: Explorative Analysis of Three Randomized Controlled Trials, 2022, Müller, Knoop et al

    They write: "While the detected response shifts in this study were of a large magnitude, they occurred only on a single item per trial, thereby limiting their impact on overall fatigue severity, as measured by eight items."
  14. ME/CFS Science Blog

    Response Shift After CBT Targeting Severe Fatigue: Explorative Analysis of Three Randomized Controlled Trials, 2022, Müller, Knoop et al

    It seems that the authors have published several papers claiming that what they call 'response shift' (a form of response bias in my view) does not affect the effect sizes found in CBT trials. For example here in PLOS One: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0252035...
  15. ME/CFS Science Blog

    The Qigong of Prolong Life With Nine Turn Method Relieve Fatigue, Sleep, Anxiety and Depression in Patients With CFS:, 2022, Xie et al

    Quote from the article: "Prolong Life with Nine Turn Method (PLWNT) is a type of qigong practice that uses external energy to strengthen the limbs and internal energy to reconcile the viscera. This practice sims to smooth the circulating qi and blood that was introduced by a centenarian named...
  16. ME/CFS Science Blog

    Protocol: DecodeME: community recruitment for a large genetics study of ME/CFS, 2022, Devereux-Cooke et al

    One point of criticism would be that the protocol doesn't fully explain that patients in DecodeME will not receive a clinical examination to see if they meet ME/CFS criteria as is usually the case in ME/CFS studies. Prevalences studies have previously indicated that a large percentage of...
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