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You would have thought they would put a description of the bicycle exercise tolerance test (ETT) in the letter, or the link to the questionnaire. Most folks with ME are going to be concerned about the crash following the test and will want to know more details about what the test entails...

Very interesting. We have multiple groups looking at miRNA's in ME/CFS. Maybe something comes of it. High-throughput sequencing of plasma microRNA in chronic fatigue syndrome/myalgic encephalomyelitis (2014 Marshall-Gradisnik et al) https://www.ncbi.nlm.nih.gov/pubmed/25238588

Lubov Nathanson is shown in the PDF as belonging to NOVA. That would be Klimas's team.

Dr. Maureen Hanson is also looking at EV's as part of her NIH center grant. Link : http://news.cornell.edu/stories/2017/09/94m-nih-grant-funds-chronic-fatigue-syndrome-center

Back in April a PwME emailed Bath to express concerns about the study. This was the response.

That article was updated here https://www.omf.ngo/2016/09/09/updated-metabolic-features-of-chronic-fatigue-syndrome-q-a-with-robert-naviaux-md/

FYI - Gorden Broderick did evaluate blood from one such study Cytokine expression profiles of immune imbalance in post-mononucleosis chronic fatigue (2012)

@Jenny @Wonko Robert Phair (The IDO Metabolic Trap researcher) posted on PR that he is interested to hear about sudden remission stories if you guys feel like sharing (His username is HTester) https://forums.phoenixrising.me/index.php?threads/the-ido-metabolic-trap-guy.62727/page-7#post-1027967

Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME! Things like this are really important as they can be very easily shown to your GP. https://www.rcgp.org.uk/eds I particularly like that it has a...

My two pennies worth. Suggestion : There needs to be two documents, one for GP's and one for specialists. There is no way a GP can navigate the complexity of ME and co-existing conditions without knowledge. The specialists job is to rule out other diseases, look for treatable co-existing or...

Not much right now but this made me chuckle - Follow the money!!! EDIT to add for those that can't see

Shoot. I cannot see them as I have an ad-blocker too, that I couldn't figure out how to turn off. Folks on Facebook can join the group by putting in a request at https://www.facebook.com/groups/421053998316485/?ref=group_header I hope people can follow that link if they want to participate in...

Thanks @Andy . That makes sense. I'd forgotten they were going to Australia 12-15th March, right before the NIH conference.

Fereshteh from Stanford Genome Technology group also hosts a closed Multi-Ohmics group on Facebook (need to request to join) where she is hosting two polls related to the multi-ohmics study Group : https://www.facebook.com/groups/421053998316485/?ref=group_header 1. If you are an ME/CFS patient...

Update 10th January 2019 Fereshteh Jahanbani still needs 4 HEALTHY boys aged between 14-18, LOCAL to SF Bay Area Facebook post from Nov 19th 2018 has full requirements

It does look an impressive speaker list. I hope they get a good attendance from NIH staffers I'm a bit surprised that the UK ME/CFS Biobank team are not on the list as they have received significant NIH funding 2013-2021 $500K+ a year...

@Trish. I remember reading a post recently where you were discussing tracking people at the moment they got ill. This video is about one such study. And this is the paper on it by Broderick et al. Cytokine expression profiles of immune imbalance in post-mononucleosis chronic fatigue (2012) Link...

I contacted Marilyn at OMF to let her know the concerns. This was her reply Yes. We have heard the concern loudly. I appreciate your reaching out trying to help. We are consulting and will be modifying the language. The challenge is for the winning poems being converted into a song and art work...

It sure would be nice if the NHS could do a search of records for ESR data for patients that have an ME/CFS diagnosis. But what I hear from folks in the UK is that the health records are a mess, and tests are not even available for review by patients. ESR patient data must be available somewhere...

This is Amit's response when asked about sharing the extra details in the first "Blood" abstract