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    ME/CFS International Research Symposium, March 2019, Australia

    One twitter user captured the environmental contaminants slide (because it related to previous posts by me on PFOS data in Maureen Hansons raw data)
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    ME/CFS International Research Symposium, March 2019, Australia

    I refreshed on two different browsers and it is there. I can try a different computer..... EDIT : I tried a computer not turned on for a few days and I see the same when I click on top right - event posts
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    ME/CFS International Research Symposium, March 2019, Australia

    I was blown away by Dr. Neil McGregors presentation. Identifying subsets by response to glucose, reasons for transcription changes, why amino acids are low, why the gut gets affected...... way too much to take in on one viewing. He covered soooo much in his hypothesis. Be interested in others...
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    OMF/Mark Davis Research Update, June 2018

    For those that did not see it this was the thread for Michael Sikora's September 2018 presentation at the OMF Symposium that provided an update by the young researcher doing the actual work (posted by @Hutan) https://www.s4me.info/threads/stanford-community-symposium-2018-sikora-t-cells.6117/...
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    News from Aotearoa/New Zealand and the Pacific Islands

    Maybe one of our New Zealand folks would like to contact Prof Tate to see if this spelling was intended or a typo. His contact detail is here https://www.otago.ac.nz/biochemistry/people/index.html#
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    News from Aotearoa/New Zealand and the Pacific Islands

    In a 2018 video he said he was getting access to a Seahorse analyser for energy analysis - also mentioned in post #11
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    Gary Burgess - The ME show, and updates about Gary's health.

    Oh no!!!!! Ugggghhhhhhhh. In his December video Karl Morten stated how he had no money to continue his very promising work. Ron Davis has said how hard it is to keep a team together without long term funding - people leave after you have spent time training them and them gaining knowledge...
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    ME/CFS Discovery Research Network (MDRN) - Australian research collaborative

    This wet my appetite What did he just find!!!!!! Can't wait to hear more - hopefully at the Emerge Conference coming up very soon! I keep always thinking about this from September....
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    Article: The role of mitochondria in ME/CFS: a perspective, 2019, Tomas and Elson

    Thanks for the link to the paper @Andy Reading this I am drawn again to the plasma exchange experiments by Stanford on the nano-needle and Oxford/Karl Morten on the muscle cells. Those are pointing to something in the patients blood either being present or not being present that is causing the...
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    Golden hour (/month)

    Interesting work @JaimeS! Love the hand drawn colour charts. Love to see data. * Are you considering continuing to track to see what happens when April comes and the weather changes? Will your doctor provide weekly or biweekly safety lab order to facilitate this? I know with insurance discounts...
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    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    Alcohol tolerance is an interesting subject - Searching "erythrocyte alcohol" brings up lots of interesting papers e.g. The Effect of Alcohols on Red Blood Cell Mechanical Properties and Membrane Fluidity Depends on Their Molecular Size So if our RBC's are already impaired it makes sense that...
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    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    I have not read anything about testing other illnesses at this stage. From what I've seen other people post, this test is unlikely to be disease specific, but can be useful to show something biologically is wrong. Les Simpson tested his own RBC's during infection and noticed changes Link to...
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    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    Both Karl Mortens team and a Newcastle team failed to replicate. These teams are considered experts on Mitochondria in the UK. Other places have previously tried to replicate but were not successful. The recent ME Association write up of Karl Mortens talk mentions this replication work...
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    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    This result on deformability from the first Davis et al RBC paper shows no overlap. The number of patient was low in this initial study. There was a very clear difference. I've not seen an ME study with such a marked differnce The second article that this thread is based on mentions a...
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    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    Apparently this is just a short article. The paragraph you see in the link is all there is. There will be no further details in this article.
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    Intimidation of PACE critics or critics of other Psychosocial research

    Just so everyone is aware. California where @dave30th works is a state that has "employment at will" which means that an employee can leave their job, or an employer can fire someone with no notice and no reason. It is quite common for employees to be terminated and "asked" to leave the...
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    NIH invites applications to develop clinical trials for co-occurring conditions in individuals with Down Syndrome

    I noticed that there is only one month to submit the applications. Why have such a short open window to submit applications.......... unless this is posted with a particular project winner in mind..........
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    One-sided weakness

    @JaimeS Here is a test from Quest and one from Mayo that includes AChR/ACh antibody testing if that helps. perhaps your PCP can order one of them for you if you haven't had them done. I'm no expert, just quoting what I've read other people have had - there may be better tests...
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    Open Stanford (Montoya) study “Exercise and Immune Profiling in ME/CFS”

    Some extra clarification from Stanford 1) The bicycle challenge is only on one day. The second day, patients come in for a blood draw. 2) The cardiologist is willing to write up a short report with the VO2 max for the patient who participates.
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    Open Stanford (Montoya) study “Exercise and Immune Profiling in ME/CFS”

    I took up your suggestion @Webdog and here is Tullia's explanation --------------------------------- The purpose of this study is to evaluate the immune system and microbiome of ME/CFS patients before and then during a post exertional malaise episode. PEM is one of the hallmark symptoms of...
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