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    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Shall I go on? All right I wonder what is next P158 I had to look it up - from web MD "Somatic symptom disorder (SSD formerly known as "somatization disorder" or "somatoform disorder") is a form of mental illness that causes one or more bodily symptoms, including pain. The symptoms may or may...
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    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Okay, here is another one lumping Fibromyalgia and Chronic Fatigue as Malingerers Blimey that's only page 17. Nooooooooooooooooooooooooooo I can't go any further.............
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    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Folks please READ the above post. Please don't follow the link unless you want punishment. If you do you will see the book of the conference titled "Malingering and illness deception" (this is where Malingering comes from) which contains things like this Apart from the first quote the others...
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    USA: URGENT ADVOCACY ACTION! House FY20 Funding Requests

    Thanks for your efforts on this @Emily Taylor . May I ask why the deadline to sign on is Wednesday, March 27th? This is right before your campaign in April.....
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    "Plunging Grant Application Rates Test NIH’s Commitment to Chronic Fatigue Syndrome (ME/CFS)"

    The only way the US will get more funding in ME/CFS is through Congressional Action. So I'm linking this new thread by @Emily Taylor which is very important for folks in the US https://www.s4me.info/threads/urgent-advocacy-action-house-fy20-funding-requests.8698/
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    ME charities' response to the Reuters article

    Here is a link to the funding provided by the NIH each year to the UK ME/CFS biobank https://projectreporter.nih.gov/project_info_history.cfm?aid=9272477&icde=31258613 And here is a list of 8 papers from the NIH project system that have come out from the Biobank...
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    ME Association: ME/CFS researcher Cara Tomas explains the results from a new study on energy production and mitochondria

    You may be interested to watch Alan Light's presentation from Dec 2018 Here is one of the summary slides In regard to mtDNA studies - my understanding from talking to others that just testing mtDNA is not sufficient - there are ~1000 nuclear genes that affect the mtDNA function
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    ME charities' response to the Reuters article

    I promised myself I wouldn't enter BPS threads. Just a quickie here (makes me so mad) The UK has some fantastic biological research work going on with new researchers joining the fold. A good way to counter Sharpe is getting a story out about this. Here are five topics of the top of my head *...
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    Is there a connection between ME/CFS and Sjogren's Syndrome? Discussion and a poll about testing

    My understanding is less than 50% of Sjogrens patients will actually test positive for SS-A or SS-B. It can take 10+ years for these to appear. Early Sjogrens antibody tests are available in the US and seem to pick up more positive tests. This article about the early antibodies is interesting as...
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    ME/CFS International Research Symposium, March 2019, Australia

    @Simon M @Chris Ponting Just in case you have yet to put it on your calendar Mark Davis is talking at 1:30pm EST April 4th at the NIH conference. https://custom.cvent.com/536726184EFD40129EF286585E55929F/files/b4e3acbbb5a145edae6748ffd273e744.pdf From what I remember from Ron Davis's talk there...
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    ME/CFS International Research Symposium, March 2019, Australia

    There was no mention of Suramin.
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    ME/CFS International Research Symposium, March 2019, Australia

    @FMMM1 If you go to the Agilent website you will see that the Seahorse is not approved for clinical use https://www.agilent.com/en/products/cell-analysis/seahorse-analyzers "For Research Use Only. Not for use in diagnostic procedures." In addition if you look at the raw data in Dr Cara...
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    ME/CFS International Research Symposium, March 2019, Australia

    Hi @Andy - are you able to remove the screenshot file uploads on my posts as Emerge don't want them shared :(. I noticed the Twitter conversation below recently posted (not me)
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    ME/CFS International Research Symposium, March 2019, Australia

    Last day focused on Treatments.These are the main highlights. Dr. Jarred Younger appeared in a video and talked about future PET/MRI studies looking for a cause for brain inflammation and try to identify activated microglia. Also he will decode data from large longitudinal studies looking at...
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    ME/CFS International Research Symposium, March 2019, Australia

    They have DNA data from 66 doctor qualified patients and ALL of them have at least one IDO2 potentially damaging mutation. Dr Phair said many patients sent him their WES/WGS genome data and 3 patients did not have one of the mutations but did have the Tyrosine pathway mutation that is the other...
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    ME/CFS International Research Symposium, March 2019, Australia

    Ron Davis stated yesterday that testing for RNA virus is really really hard to do so they were looking at parasites next. He spent some time explaining how they are developing tests to combine many samples while at the same time looking for multiple matches in their DNA tests. This helps with...
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    ME/CFS International Research Symposium, March 2019, Australia

    The second to last slide shows high PFOS levels in many patients. PFOS has been well studied and is known to affect the thyroid. e.g. Thyroid disruption by perfluorooctane sulfonate (PFOS) and perfluorooctanoate (PFOA) .
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    ME/CFS International Research Symposium, March 2019, Australia

    Thanks @Andy. I still see them large on the browser I am logged in and posted with, but other windows where I am not logged in they are small. Maybe I have the images cached........ Next time I'll try and post thumbnails
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    ME/CFS International Research Symposium, March 2019, Australia

    Here are the glucose subset slides - 777 patients retroactively studied! 1. Glucose tolerance test n=22 split into three subsets Flat, Trunctated, Normal [Screenshot removed] 2. Retroactive analysis of 777 patient data [Screenshot removed] 3. How these 3 subsets related to other medical test...
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