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  1. Trish

    Time-dependent complexity characterisation of activity patterns in patients with Chronic Fatigue Syndrome 2024 Rabaey et al

    It's not word salad. I enjoyed trying to get my one remaining mathematical brain cell activated to get an overview of what they did. The aim was to see if a particular form of mathematical analysis that has been developed for studying complex processes over time in other situations such as...
  2. Trish

    Functional Neurological Disorder (FND) - articles, social media and discussion

    That makes sense to me too. I have tended to avoid getting involved in the FND threads because I don't have the energy to follow all the discussions and it's not an area of medicine I know anything about. I understand the reason some pwME are concerned about FND as a diagnostic label because...
  3. Trish

    BBC podcast: Inside Health - Can Noise Harm Our Health? 2024

    I haven't listened to it. This is the blurb: "From ear-splitting aircraft noise and the drone of traffic to the hum of an open-plan office, the world around us can feel loud. But is it getting louder? And is this having any effect on our health - and even on how long we live? We find out when...
  4. Trish

    Functional Neurological Disorder (FND) - articles, social media and discussion

    If FND was a label meaning you have clear neurological signs, but we can’t find anything on your scans that indicates damage to part of your brain or nervous system, then I think if I were diagnosed with FND I would be relieved to know it wasn't a sign of something known to be irreversible and...
  5. Trish

    “They seemed to be like cogs working in different directions”: a longitudinal qualitative study on Long COVID healthcare services in [UK], 2024, Fang+

    I'm not sure what that waffle means. I assume it's saying better services are needed for LC.
  6. Trish

    Review The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett, Tyson et al

    That doesn't seem like a fair characterisation of patients with FND. Just as in ME/CFS, being diagosed and told the only treatment is supportive care is a huge blow when you are suffering from something you don't understand, and nobody else understands, and that makes your life difficult...
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