Search results

Crossposted with the 2 posts above this one. Hi @Friendswithme, welcome to the forum. I see this a little differently. We have a forum rule that does not allow speculation about any individuals' health, but does allow careful discussion about information that is in the public domain. In the...

Do you mean clinics are being run that 'treat' all these conditions together as if they are the same?

It's shocking how much credence is given to unevidenced theories like this just because the authors want it to be true. The power of eminence and prejudice is shocking. I think this also demonstrates the dangeŕs of conflating ME/CFS with other fatiguing conditions.

Thanks to George Monbiot for picking this up. I hope he gets a good response.

So disheartening. I immediately think this needs a response. Is there any point?

I did wonder whether the LP/OptimumHealth people use the rice-goes-bad-if-you-insult-it story as a gullibility test to see whether potential clients are suitably gullible to believe the 'science' they are telling their clients to justify their methods.

I get motion sick as a passenger, not as driver. I think that's a common experience unrelated to ME/CFS.

I'm wondering why you left out ibuprofen.

I had a 10 minute ambulance ride recently. Every bump made me tense to hold my body in place. If I'd had to endure several hours I'm sure it would have induced severe muscle pain and PEM. Car journeys are a very difficult too, apart from motion sickness, there's also a lot of muscle tensing...

It's a public thread, anyone is welcome to share the link.

We've been asking for longitudinal studies like this for a long time. I don't see why someone can't do one with proper funding.

Do we have evidence of puffy faces? I'm not aware of any. Nor have I noticed it in myself ir my daughter, though for myself I'm not in a fit state to look in the mirror in PEM.

You are not alone. I'm the same. My PEM that fits the definition of PEM including delay, worsening of all symptoms and new ones, as spelled out in my post, is, as far as I can see, entirely triggered by exceeding my physical threshold. I have tended to hold back from saying this when people are...

I have different responses to the different stimuli.

Thanks, @EndME, yes, I left out cognitive which needs to be included. I'll add it to the title and first post.

I have started a new thread here Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications? Edit: New thread title amended.

I have started this thread in order to reduce diversion of another thread where the subject arose. Here are a couple of quotes from that thread: My questions for discussion: pwME experiences: Is the worsening of symptoms triggered by sensory stimuli such as light and sound the same from a...

Why does the fact that for some pwME sensory sensitivities set off worsening of symptoms mean that exertion triggered PEM and studies such as 2 day CPET are nonsense? There may be more than one biological mechanism leading to worsening from different stimuli. I don't want to divert this thread...

I think the Dr Jake Hollis one is worse in a way, as he repeats as fact the unevidenced stuff about stress, adverse childhood experiences, perfectionism etc.

Moderator note Mods have been asked for advice on what is allowed by our rules in this discussion. This is the relevant rule: This means that if personal medical information is on social media, including petitions, it should only be linked, not copied. If the information is in a newspaper...