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I wonder how this influence tight junction proteins. Immune system activation is associated with decreased epithelium barrier integrity, but so is a number of other things also. It's not just the expression of these proteins that can be affected, but also their localization at the cell membrane...

Kunst is not a ME/CFS researcher unless he has changed fields recently. His twitter has become more long-covid dominated during the pandemic, but I'm not sure that reflects a change in his field of work. If I remember corectly he has worked with stigma previously, and he did get a minor bit of...

Another thing is how they say it's a diagnosis of exclusion, when there has been much talk (also from Chew-Graham? At least from several biopsychosocial folks) about how functional disorders also require "positive signs" for diagnosis (with the implication this makes the diagnosis more real/true).

This is on top of my list when we look for a place to move, finding somewhere that can be reasonably silent in the living space at least. A quiet pc for working from home is high on the list. I can't wait to chuck the refrigerator out of the living room (shared kitchen/living spaces are pretty...

Like Ariel I also don't feel awful all the time. Even sometimes when I have really bad PEM I can feel "fine" as long as I am in a reclined chair, but if I try to move I will feel awful. I rarely feel fatigued in the way I understand the word. In Norway we can use the word "fatigue", and I see...

Did you check for malnutrition? I don't know how it is in the UK, but malnourished patients are unfortunately not exactly uncommon in Norway. Commonly said this is the case for 1/3 in every hospital (although if you go looking for where these number come from they are extrapolations from single...

Loss of smell and taste can easily lead to malnutrition, which by itself can be serious but it can also worsen other symptoms, such as inability to stand/walk.

For omega-3's which is what is commonly given all the credit for health benefits of oily fish, the usual "cut-off" for when a benefit is seen is between 1-3 grams depending on the study and whatever illness that has been looked at. It would be hard to find that level of detail from an FFQ...

@alex3619 I need to read up on this :) Agree a diverse diet, glutathione, oxidative stress etc. is important, but I'm sure you know that's not relevant only for pwME. @Amw66 At least around Europe the education is considered the same, as an authorized dietitian can work in other countries not...

They've used food frequency questionnaires to assess dietary intake, in other words we don't know a lot about the actual intake of these foods from their diet.

Nina Steinkopf has written that REK has not taken the complaints into account and the study will keep its approval stamp. And I believe we all are surprised that Recovery is still described as a patient organization in line with the ME Association.

Must be all the attention LC has been getting in the media, scaring people. Altough our Norwegian Recovery GP Vogt has said fewer kids gets LC because it is harder for parents to persuade them they're ill or something. :banghead:

Anxious and stressed? Must be the patient.

I've read at least one study that used some sort of therapy (don't remember if it was CBT or ACT, but something like that) and looked at epigenetics, for the persons who benefitted from therapy there was a change in epigenetic signature but not in the other group. It was a small study and I'm...

Also tøv, tøys, surr, sludder, rør, svada, fjas, vrøvl, tåpelig, dumskap, vissvass... although I'm not quite sure what I'd use in case of "tripe". I have a few others my boyfriend (studying to become a Nowegian/English translator) says are "too harsh" :p

This is very much how we've been taught to deal with questioning patients in clinical nutrition.

They'd more likely need two-four weeks on a standardised diet. By week four following a change in diet most of the metabolites in the ~50 participants in my master thesis stabilised at a new level, for some metabolites most of the change was in the first two weeks with minor changes to week four...

This! Why is there not a study looking at the prevalence of this? Makes me so sad/frustrated. If I didn't have someone who can cook for me on bad days my intake would drop too much on days it really shouldn't.

"Evidence based weight management program" and a waitlist control of people who want to participate. Anyone care to guess if someone who wants to follow a weight loss program with what looks like higher than normal amount of follow up will feel better than people who want to do the same but...

I had a lecturer when I took my advanced genetics course who was very interested in the regulatory potential of long non coding RNA. Sadly pretty common :( It's "too much of a burden" on both researchers and participants...