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The problem we have, if we are trying to argue from evidence to get proper care is that we have no evidence that an ambulance ride will produce long term worsening any more than it would for someone with bone pain from myeloma or whatever. And the alternative would seem to be dying of...

Agreed but insisting that people have a 'disease' called 'ME' gives them enough rope to hang the entire membership of S4ME. And they have delighted in doing so for twenty years.

But I see this as an unnecessary semantic quibble. In medicine just as in ordinary life we have concepts for realities, and also concepts for things that are speculative. The term 'concept' is used for both the idea and the thing much of the time. It is used in discussions of how we are...

Thanks, yes that makes sense. I find it hard to believe that having an illness like ME/CFS would alter connections of the hypothalamus very much. I may be wrong but it is hard to see how that would work. What might be more interesting would be the possibility that if your hypothalamus develops...

Will the acupuncturists share the same Needles?

I can't bear to look. Turn of the Screw? Or more Transylvanian toothmark stuff? One thing is for certain, nothing new in twenty years. Interesting that the Guardian publishes these. All very fair and Polly Toynbee? Maybe the Times has decided to take a firmer editorial position. I never...

Well, so far that approach on the part of patients and 'ME expert' physicians has led to decades of ridicule as you know. Maybe it would be a good idea to talk the language of medicine about the illness rather than using terms that will ensure that ridicule continues for a few more decades. It...

The linguistics of 'concept' is hardly detail!

I guess it is directed at people who have developed an understanding of how biomedical science works or want to. In that context I cannot see how there can be a problem since I make it absolutely clear what the concept is referring to. That is both something real - a group of patients - and the...

I think maybe you are missing the whole point of the article?

I think you may have misinterpreted my sentence. ME presumed a single process of a specific, defined neurological sort (encephalomyelitis) that we have no evidence for because it was inferred from a completely different illness - acute Royal Free Disease.

Discussions here suggest that things are a lot more subtle. Some members do not recognise the standard description of PEM. There are claims that PEM occurs I other conditions. I agree that in a sense PEM is all you need for the syndrome of ME/CFS because the other things are implicit but as...

It does all the time in rheumatology and gastroenterology.