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I think @Ash has a good point here - I am sure people with ME/CFS are seen regularly by GPs and deliberately not investigated for symptoms that might merit MRI scans because of the diagnosis on the notes. This sort of thing happens all the time and with other diseases too, but I suspect...

Hi @chippenstein, We have a rule that we do not advise people on their care as individuals. Nobody here can know just from what you say (which is pretty complicated with five diagnoses already) what your problem is, what to call it or whether it is likely to follow similar patterns to their...

It's a fun dialogue but all this stuff about Long Covid being a vascular disease is just as much garbage as Garner and potentially more harmful, I suspect. Why oh why can't we have someone saying that we don't know? Amy Small was talking about having access to services but as far as I can see...

Actually, I am quite happy to say that for the first two. They don't make any pathological sense.

It is something like that but I think you are right to point out the asymmetry. Why should anyone bow to the authority of Akiko Iwasaki or David Putrino and not Simon Wessely or Michael Sharpe? Wessely and Sharpe are respected mainstream opinions in their field. The stuff about microclots and...

This wasn’t helping me. I don’t blame Cochrane—it is an edifice I have helped create—but these reviews represent for me a serious disconnect between mainstream medicine and my own experience, although I am no specialist in this area. It really does seem that Dr Garner would benefit from some...

Nice to have a nurse lecturing on neck operations.

Hopefully we aren't going with it. I have never had a clear idea how to view BHC. This looks like the usual make believe, which I guess does not surprise me that much.

It is interesting to see different psychiatrists give completely different explanations of ME/CFS with great confidence as if their explanation was self-evident to all their colleagues (who turn out to think something else). It needs to be pointed out to them somehow that we don't just make up...

Not earth, brain. If faut cultiver notre cerveau. Et aussi manger les biscuits de dr Pangloss.

This seems to miss the point that there is no need to screen for PEM because we have no evidence for exercise being of value in anybody who has this sort of illness.

Thanks to all for the comments. I think the last version deals with some at least.

It's definitely axis some of the time, but why should I care? Maybe getting it wrong adds to the niminisation* (sic)? *Referring to a critic's comment about Byron's Francesca of Rimini.

I sent it off after going over it again and making a few more tweaks. I did look at the references but may have missed a few gaps. Fortunately the software usually handles that. It can always be edited online.

Thanks @Sasha. Am I allowed to assume that you are the ultimate proof reader and I can post it online!!? I had better go over it again I guess.

A few more tweaks below.

Yes but that example shows why your argument doesn't really work. The reality is that the idea that ME is a neurological disease has been picked up by patients from medical gurus who point out it was classified like that fifty years ago. Diseases with respiratory symptoms are often not...

Perfect Trish. So we even have a citation (which I have used before). The first not is right but the rest of the sentence is hard to parse correctly so I will modify it. Thanks.

Yes, if weight is steady it must just be what people need to stay stable and to a large extent the hypothalamus ensures that.

I may have missed that.