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  1. Jonathan Edwards

    USA: Mount Sinai PACS clinic and Dr David Putrino

    In what sense? Cutting edge researchers do not normally produce social media threads of garbled messages about off label treatments.
  2. Jonathan Edwards

    Mind and Body in the Guardian again

    I don't understand that sentence. I meant that the term is universally used to imply that the clinical features are due to inappropriate thoughts, secondary gain, so-called conversion disorder or whatever. That is what doctors mean. That has nothing to do with what is actually wrong - which we...
  3. Jonathan Edwards

    USA: Mount Sinai PACS clinic and Dr David Putrino

    Putrino isn't an immunologist or even, as far as I know, a medic. Why is he writing this stuff? There are no useful data. What is the justification?
  4. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    Fair enough but I wonder if we should be so pessimistic. MEA seem to have acquired £3M research funds for nothing in particular. IiME raise enough to run very costly conferences every year. If S4ME members decided to donate to the website which is already there, for this precise purpose, and...
  5. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    How would you devise an honest information sheet for patients?
  6. Jonathan Edwards

    Mind and Body in the Guardian again

    Functional has a bad name because it was devised and is universally used by doctors to mean behavioural/psychological despite the fact that they deny this in writings they know may be read by patients. Seizures are not classifiable as functional but there are recognisable groups of movement...
  7. Jonathan Edwards

    Mind and Body in the Guardian again

    Pity she had not done some rheumatology. Steroid injections often produce permanent resolution of symptoms probably because they have a potent local shrinking effect on tissue matrix. She probably had a tongue of soft tissue nipped between some bony healing spurs and the steroid shrank it back...
  8. Jonathan Edwards

    Mind and Body in the Guardian again

    As someone who has done an MA course in philosophy I can say no to that. 'Continental' philosophy, with scare quotes, is defined as a particular stance. It was popular in Germany and France, yes, but so was analytic philosophy in some circles.
  9. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    Does it? To me it could be 'that simple'. There doesn't need to be any formal appeal as far as I can see. We live in 'viral' times, in more ways than one. If there is an account to donate to all that is needed is for us to make it known to each other that there is a will to raise a substantial...
  10. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    Doing it through Sonya sounds a good plan to me if it is more complicated than just sending donations to an Edinburgh account already set up. But the latter would be the simplest of all.
  11. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    I am not sure what 'leadership' means here. People often donate large sums of money to research units without being asked by the unit - in legacies for instance. Jo and I had a legacy of over £100,000 out of the blue on one occasion. It would obviously be useful to know how the Edinburgh people...
  12. Jonathan Edwards

    Mind and Body in the Guardian again

    Although Freud and, I am pretty certain, Engel, were Jewish. I suspect that the whole field may be an offshoot of a North/Central European pattern of thinking called Continental Philosophy, which is mostly hot air. The same sort of story continues with the idea that our experience of the world...
  13. Jonathan Edwards

    Mind and Body in the Guardian again

    Freudian hogwash has always been speciality of the centre left.
  14. Jonathan Edwards

    Mind and Body in the Guardian again

    https://www.theguardian.com/society/2025/jan/26/the-mindbody-revolution-how-the-division-between-mental-and-physical-illness-fails-us-all Nice Guardian journalist chatting to her chum Simon. All about how dreadful mind-body dualism is. Which of course it is - and mind-body dualism (aka...
  15. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    DecodeME was funded and is winding up with data analysis in the first half of this year. But if funding cannot be secured for the next big project over the next six months the unit may well be unable to retain the team and all that has been learnt from working as a team. Science funding tends...
  16. Jonathan Edwards

    If ME/CFS research got £1 billion, what would stop it being wasted?

    It is none of my business how people with ME/CFS want to spend their money on research but I do think there is an opportunity now to try to raise perhaps £250K (it might turn out more) to ensure that the follow through from DecodeME is as well supported as possible. So far the capacity of the...
  17. Jonathan Edwards

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    If I was not preoccupied this week I might think about a very brief letter to the BMJ basically saying that it is essential that the international medical community has taken note of Hilda Bastian's recent statements and their implications for Cochrane's credibility. I might get around to it...
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