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I see that Dr Brennan Kahan is a lecturer in medical statistics at QMUL: https://www.qmul.ac.uk/blizard/staff/centre-for-primary-care-and-public-health/staff/brennan-kahan.html

And they are very seldom challenged when interviewed. Speaking of which, did anyone hear Wessely and Prof Sami Timimi on the BBC Radio4 Today programme this morning, talking about ADHD? (starts at 1.46.30 here: https://www.bbc.co.uk/sounds/play/m0001phx)* Listening to Timimi challenging Wessely...

Although I agree with the rest of your post, I disagree with the sentence above. I have been pacing for most of the past 25 years, but my life is in no way acceptable - not just because of what I am not able to do, but because of the levels of discomfort and pain that I endure. For me, pacing...

Thread about a Fiona Fox article for the Revolutionary Communist Party c.1996 for anyone who’s not seen it: https://www.s4me.info/threads/article-by-fiona-fox-smc-for-the-revolutionary-communist-party-c-1996.3452/ (This is the article where she claims that involvement with the RCP inoculates...

I think they all know the value of being helpful to the SMC when it comes to promoting their own work. I imagine Carmine Pariante may have volunteered his time at short notice once or twice. It seems to work a bit like the Masons. Does anyone know if they have a secret handshake?

Funny that – when I think of the SMC, dysentery comes to mind. I was tempted to reply to Pariante’s tweet by saying: “This article appears to show that Pariente et al AREN’T just a bunch of incompetent f@#&wits.” But I decided that discretion might be the better part of valour. I see that The...

I’m not sure that’s correct. The paper shows no correlation between pre-illness psychosocial factors and persistent fatigue, but, as far as I understand, it does not specifically refute the notion that a similar immune response could be triggered by acute emotional stress. Participants were not...

As @Simon M points out, the researchers "measured psychosocial factors including childhood trauma before the interferon-alpha treatment started. And these factors did not predict subsequent fatigue." I mostly agree with what Simon, Jonathan and Adam say above but I'm not sure that it...

Hi @Amy Proal. Thanks for joining the forum. Great to have you here. I’ve not managed to read the paper yet but just looking at what @Hutan posted above, one sentence caught my attention: “A snowball effect begins, in which the microbiome becomes increasingly dysbiotic as the strength of the...

This is very good and very well written. I particularly like the tone. We all have to try so hard to moderate our language and bend over backwards to seem reasonable because of the lies and stereotypes that have been propagated about people with ME, and Naomi has got it spot on with this in my...

Transcript from Hansard (https://hansard.parliament.uk/commons/2018-12-05/debates/AE0D2D86-28E1-40CC-A4E5-4DAC25733B52/Engagements): I fear he is on his way to the House of Lords.

2006 response to draft guideline from Association of British Neurologists: ...which not only failed to provide any reliable evidence to support the claim that CBT and GET are effective treatments for ME/CFS, but, as @Jonathan Edwards points out in his letter to the Scottish Parliament...

I agree. Also: 1) I understand that committee members should not be allowed to discuss the details of the NICE guildline meetings publicly before the process is complete, but it seems odd that someone whose views on CBT/GET are well known cannot continue to express those views while serving on...

The answer to my question seems to be yes. From Developing NICE guidelines: the manual

Perhaps @Jonathan Edwards could be persuaded to add this to his diary and ask her himself? I note that it is a UCL lecture series. I hope it will be recorded.

Do lay members have the same voting rights as other committee members? Do we know if all the lay members are non-BPS? (I only know Adam and Sally.) And are we confident that the chair and vice-chair are at least neutral on BPS issues? I really hope I’m wrong but in the past I’ve tended to be...

I don’t think that will be enough. This all feels very stage managed. They appear to be trying to make it looks as though they are listening to our concerns by appointing extra patients to the commitee, inviting non-BPS witnesses, and then (trying to appear to be bending over backwards to listen...

Yes, I would be very happy to have White, Sharpe, Chalder, Wessely and Crawley called as witnesses if we had Edwards, Crowhurst, Speight, Shepherd, Nacul and others we could trust on the committee asking questions and making the judgements. But we seem to have almost the complete opposite. I...

MS: “Well CFS stands for Chronic Fatigue SYNDROME, and a syndrome defines a collection of symptoms, It’s not the same as a disease, where we know the cause.” KG: “...I do think the disease is clearly... its really unpleasant, and I do really feel, it must be a really difficult thing to have...

Kelland’s report states: The above suggests that Cochrane had made the decision to withdraw the review, and that it would not be reinstated unless Larun was able to adequately address feedback. The new note below the review states: Withdrawing the review until the author has adequately...