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It's a very helpful and honest letter. I hope it's read widely.

This is local to me. It looks so ghastly I wouldn't even want to go to argue with them.

Done.

That was the surprise element.

I could try. If you have his email address, please inbox me.

Eurgh.

To be fair, yes, I was asking Ponting something that should be asked of Harrison. It probably should be put to him too, though it is always good for the vice chair to be under a little bit of pressure in regards to this, because then he's more likely to do something about it. Basically, there...

I'd like to see this too.

I agree. 'Supportive counselling' is far better than 'supportive CBT'. It also allows for flexibility. Though, I have to say, all my friends who've had such services on the NHS find it terrible. Charities seem to offer better, more targeted services anyway. My friend with serious PTSD and...

Tinnitus coinciding with popping ears maybe? My ears pop all the time and I get tinnitus. It's not quite as you describe though.

It seemed to me she 'resigned' primarily because we didn't all support her idea to report AfME as an organisation. I said it was inappropriate and petty for one charity to complain about another, but that she was free to do so as an individual. Now she has.

So when I say 'activity management', I'm intentionally meaning both pacing and GET, because that's what the clinics do. The clinics intentionally use fluid terms. So sometimes the CBT is pacing advice, sometimes it's about embedding the sort of activity management principles that underline GET...

I think Chris is obviously a good egg, which means I'm feeling more patient with the CMRC than I would have been. Really, the people I want to ask questions of are Harrison and the (non-board member) Mark Edwards. On hype: I understand that feeling. There's a lot being promised, it feels like...

I don't feel this question has been answered. The other Mark Edwards isn't on the board but has been involved with the CMRC. And whether Harrison refutes that he sees ME as an FND, the paper he's involved with explicitly says ME is FND/hysteria. He can refute it all he wants, but the paper has...

But this isn't really CBT. It's pacing. Part of the problem of CBT is that it means everything to everyone. It was very clear on both tables I sat on at NICE that people in clinics use CBT mean a variety of different things, but usually 'activity management'. Asking for continued CBT of any...

It means time to be ill, but also things like accessing benefits and support, if I'm understanding it properly.

Here's the rub though: NHS-led CBT of any kind doesn't seem to work. Even the supportive stuff. If it did, why is IAPT showing only a 9.2% recovery rate? So do we argue for supportive CBT (which may still be useless) and expend valuable energy explaining the differences between the two kinds...

Not a bad suggestion, though an unlikely thing to happen. They were taking suggestions for how to include severe patients, so I would recommend that people submit ideas directly.

I think it's a good idea. A few Scottish publications ran articles in the run-up. The more organisations providing press releases, the more likely something is to stick. Also, as with the Parliamentary briefings, it at least means journalists can see a variety of views. That way they'd be less...

They did discuss severe patients taking part via Skype etc. That's not clear from this, but I expect this will form a separate group that checks in with and provides evidence to the main group? I suspect they're still figuring that bit out.