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  1. adambeyoncelowe

    Antipsychotic drugs v CBT versus a combination of both in people with psychosis: rc pilot & feasibility study, Morrison et al, 2018

    From that classic of modern culture, The Abyss (and Don Miguel Ruiz before that): 'We all see what we want to see.'
  2. adambeyoncelowe

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    This is all true. Also, the UK is particularly strict on things like libel (it's the libel capital of the world), and that scares many journalists (who earn a pittance).
  3. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    What's interesting is that it reaffirms that the OI in ME is something different to POTS. Obviously, some people might have POTS as a co-morbidity, but the OI looks like it's something else. They don't appear to have come to conclusions about hypoperfusion definitely being the cause, although...
  4. adambeyoncelowe

    United Kingdom: Sussex & Kent ME/CFS Society News

    Usually, they won't reply unless you're a constituent or someone official. Councillors can be better (my mum is a local councillor, and constituents seem to prefer her to their local MP, since she does more locally). I'm impressed Caroline Lucas responded at all. It certainly indicates to me...
  5. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    This goes back to the discussions on vertigo/balance problems. Ramsay mentioned vertigo right at the beginning, and this is the second study in a week to mention disequilibrium.
  6. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter
  7. adambeyoncelowe

    Mind, Madness and Power - Simon Wessely and others

    Let's not forget this paper: Cognitive Behavior Therapy for Chronic Fatigue Syndrome: A Randomized Controlled Trial. Alicia Deale, Trudie Chalder, Isaac Marks, and Simon Wessely. Am J Psychiatry 1997. His co-author, Dr Isaac Marks, was a big fan of electroshock 'aversion therapy' for gay men...
  8. adambeyoncelowe

    United Kingdom: Sussex & Kent ME/CFS Society News

    It's good she replied. You reminded me that my MP (Rebecca Long-Bailey, Lab) hasn't responded to a single email in the last 9 months. Even Theresa May's office wrote back to me when I contacted them! As a lifelong Labour voter I might finally jump ship to the Greens!
  9. adambeyoncelowe

    Balance deficits in Chronic Fatigue Syndrome with and without Fibromyalgia (2018) Natelson et al

    Yep. Vertigo and lightheadedness started when I was about 14. I used to beg not to have to go to school, but my mum had two jobs and thought I was putting it on, so I wasn't allowed time off. I felt nauseous and poisoned and waking up was so hard. I started doing meditation but always fell...
  10. adambeyoncelowe

    Mind, Madness and Power - Simon Wessely and others

    I think people of his ilk have to be arrogant, even deluded. How else could they believe they're right about things like PACE?
  11. adambeyoncelowe

    United Kingdom: Sussex & Kent ME/CFS Society News

    I hope you respond to Lucas and that she jumps ship!
  12. adambeyoncelowe

    United Kingdom: Science Media Centre (including Fiona Fox)

    It's shocking. Likening sick people who want to get better to climate change deniers and animal rights activists. It's beyond offensive. If they said the same things about black or LGBT rights campaigners, they'd be rightly lambasted. Why does this go unchallenged just because they're dissing...
  13. adambeyoncelowe

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Your first impressions were correct! Likewise, Sharpe seems absolutely incapable of imagining that he could ever be wrong. That's the biggest danger of these BPS 'scientists'. They lack empathy and self-awareness.
  14. adambeyoncelowe

    Jen Brea tweets about U.K. Unrest campaign

    Agreed. We could crowdfund that money pretty easily, I expect.
  15. adambeyoncelowe

    Jen Brea tweets about U.K. Unrest campaign

    Sadly, piracy is part and parcel of creative life. I've worked in publishing and it happens a lot. You just have to accept that it's beyond your control, to a degree, report instances that you find, and get on with life. It's not nice, but it's way too easy for people to share anything digital...
  16. adambeyoncelowe

    Jen Brea tweets about U.K. Unrest campaign

    I didn't say they all would. But a niche film also isn't the same as a throwaway blockbuster movie. Most (or many) people didn't just stumble upon Unrest and watch it. They sought it out. They probably wanted to watch it. Probably enough to fork out for it if they had no choice. People...
  17. adambeyoncelowe

    Jen Brea tweets about U.K. Unrest campaign

    I suspect it's a rather niche film for a general audience to stumble across, let alone watch on YouTube for 90 minutes. That suggests to me that it was people with an interest in ME who watched it, for the most part, and those are also the people who would've paid if they had no other choice...
  18. adambeyoncelowe

    United Kingdom: 2007 NICE CFS/ME GUIDELINE

    I really hope we have some good people on the GDG, or they'll pull the same nonsense evident in these minutes. In essence, evidence matters, except when they say it doesn't. And they use bureaucracy and 'methodology' to discount anything they don't like. The whole process, like the PACE minutes...
  19. adambeyoncelowe

    Dr Myhill’s complaint to GMC about PACE authors.

    I wonder what the response to the complaint will be.
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