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Well if they're putting FM and ME together, that might raise it to 0.2-0.4%! Maybe they're planning on padding out the numbers with some other illnesses?

They've replied to one of my incendiary tweets saying: I pointed out that it's either poor wording in the trial registry or it's poor trial design. Hopefully it's not both! But there's a huge issue of phenotyping already, so smushing everyone together seems naive at best.

Yes. Still can't understand 'em, like! ;)

Him again!

'Like billy-oh' - in this context means 'like mad' or 'a lot'. It typically means 'an extreme example of something'. Also Billy-o, Billy-ho, etc. Not to be confused with Billy No-Mates (meaning 'on your own' or 'a loner'), although I suppose the two could be connected (with Billy No-Mates being...

Interesting. I should certainly hope not.

I'm tempted to enrol just so my partner can call them all quacks while I make duck noises. Actually, knowing him, he'd be the one who'd prefer to make the silly noises while I rant and rage.

This is so stupid. I note Arthritis Research UK has presented at CMRC before. They should know better than this.

I tried a finger prick blood test recently. It took me two days and six lancets to fill two tiny little tubes with blood. My blood is super sticky! It was forming little blobs and was clotting super-fast. Every finger had pricks on it (my Nana would make an awful pun there). Yesterday, my...

Congratulations!

Those Photobucket images aren't showing up?

People who use linguistic trickery to win arguments, even when it flies in the face of reason, aren't playing on an even playing field anyway and don't intend to change that. We should just point out their trickery and expose them for the snakes they are. If it's not ME they object to, it'll be...

This was my experience too. I was told I was positive and coping well, so didn't need to go. It's also worth noting that CBT means different things to different people, which is part of the problem with it. Our local clinic refers to activity management with group mindfulness as CBT. Their...

On the name thing: it's not an argument in good faith, so it's not worth engaging in. Malaria literally means 'bad air', but we don't spend hours debating its validity or the intentions/honesty of malaria patients. People just call it malaria. We have to ask why people care so much about the...

It's not pushing past the fatigue, per se, which causes PEM--it's pushing past your energy envelope. Fatigue is just the sensation or awareness of having a small energy envelope. Your fatigue levels might feel lower or higher based on, say, if you've had a cup of tea. But your energy envelope is...

This is much better. Thank you. I would reword this: I think you mean the opposite to what's implied. For example: 'However, a number of studies disagree that deconditioning is a major cause of ME, and suggest it is a result of the illness instead.' Sadly, the de facto position among the UK...

So the rest of us can try this, can someone post the formula and how we get each number?

Old wine in pop bottles would be more po-mo! Champagne in a cream soda bottle.

In a way, though, it does. How often do they trot out the line that the criticisms of PACE are published in 'low impact journals'? It's all about status and reputation. They also point to things like Cochrane as further proof that they're right. Then there are things like knighthoods--all of...

We don't want people like MS exerting pressure on others to change their materials. It's happened before. Remember the pretty good BMJ monograph on ME that overnight became a butchered thing of contradictory ideas because someone from PACE had reviewed it? PACE authors also previously did...