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I think it's relatively hard to get hold of. I've not tried purchasing it myself.

Xyrem is GHB, right? That stuff sends me to sleep alright! Now only if they'd licence it for us...

FND is coded under 'conversion disorder', so it's just an outright lie. They trick you into compliance with a medically sounding diagnosis, while treating you as if you're hysterical.

Which is frankly much better. Why does @Action for M.E. keep peddling the BPS line? You don't see the MS Society going on about stress as a major factor in MS! Why is ours the only illness where we have to always slot something in about psychosocial elements?

So I've gone from 8-9 hours a night on antihistamines to 7-8 on amitriptyline. I feel better this way. I've noticed my sleep pattern is better too. It has more even waves of deep sleep, whereas before it was big chunks of light sleep with a few thinner chunks of deep sleep.

It's also possible he was misdiagnosed and actually had bipolar disorder. My best friend has it, and sometimes our symptoms appear very similar. When he has his depressive phases, he can't do anything and feels incredible fatigue. Then when it passes, he rushes to get everything done like a...

More central sensitisation crap has wormed its way in there! 'With M.E., the body’s systems are thought to have become poorly regulated and hypersensitive.' Thought by whom? Hypersensitive where and how? I'd replace it with something along the lines of: The body is in a hypometabolic state...

This was me too. Except, the 'burnout' kept recurring, even when I stopped. It had its own rules, which I now understand comprise PEM and OI.

Would you speak there now, given its professed change of direction?

That's all very exciting. I don't want to get my hopes up, but I really hope he can share more info soon. We need a little bit of sunshine.

It's worth pointing out that many doctors now say not to take fibre for IBS. It can aggravate your symptoms.

Very helpful and clear. Thanks.

Can they really be called risk factors if everyone has them? I mean, breathing is a risk factor too...

I completely disagree. It's justified to ask why a bunch of supposedly compassionate psychs have called their wank-rock band Bedlam. It reveals rather a lot about their unprofessional attitudes.

But they would do this anyway.

Holy Jesus. That's every bourgeois, poseur nightmare I've ever had rolled into one. Like your worst uncle and your worst uni lecturer teaming up to cover Genesis with a ukulele and sitar.

But it *isn't* a somatoform disorder and we don't want them equated. The exclusion tells doctors, 'It isn't this. If you think it's this, don't diagnose ME.'

I'm with Trish. Besides, somatoform disorder would probably mimic ME (if we believe such a diagnosis even exists, of course). Bipolar, PTSD and MDD could also present as superficially similar to ME.

Any updates on this?

I think something more detailed than a survey, and open for reports indefinitely, would be helpful.