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So his wife cyberstalks people for any mention of her beloved? I'd be far more worried about that than a bunch of patients (rightly) getting angry at their mistreatment and how they've been fobbed off for decades.

You can have functional, non-epileptic seizures. But then 'functional' can also be used to mean what it actually means (as in, related to the 'function' of something). For instance, functional MRI does look at actual brain function. It's not a scan of pschosomatic brain matrices (I just made...

Could it be neuropathic? Amitriptyline would be the go-to prescription drug for that. A doctor would probably prescribe it easily enough on a trial basis (it'll help with sleep too). Vitamin B12 may also help if you're low/deficient (alternatively, you could be too high...). But it could be...

It's also the label more and more ME patients are being given. They don't realise they're being told their symptoms are psychosomatic!

Thanks for the clarification. It's all certainly very odd.

But did they reply to that letter? All we've seen is a letter asking if they wanted to leave, not a statement that they are leaving. Sorry if this has been posted elsewhere and I've missed it! Just trying to get the evidence straight. I explicitly said you didn't say that. Potentially. The...

So far, it sounds like IiME never responded to the Countess of Mar's communication? That's not the same as formally leaving. If they were unable to send representatives generally, then the other Forward ME members may have assumed they were still part of the group but simply not in attendance...

Always with the multidisciplinary teams! It's about job creation, not treating patients.

The worst part of this illness? The disease that is the BPS fuckwits themselves. BPS bullshit can be directly correlated with worse outcomes in 100% of all patients, according to a study I just did by questioning myself in a mirror.

That Lizzie irritated me. It's not about trying hard and being positive.

It's the opposite of Occam's Razor: they're using torturous arguments to prove their theory, when it makes far more sense that objective neurocognitive problems are precisely that.

They're definitely overinterpreting. It's a nonsense study that doesn't make sense. @Jonathan Edwards, what do you think, as a scientist? It was all psychobabble to me!

http://jnnp.bmj.com/content/early/2018/05/06/jnnp-2017-317823 I'm not sure if this is the 'biomedical research' MRC claimed to be funding: http://gtr.ukri.org/projects?ref=MR/M02363X/1 They're similar but not identical. Perhaps an early spin-off? They like to make a meal from bad research...

It's certainly part of the issue, but I think it'll disappear soon, once we have better confirmatory tests. However, when it comes to the news, there's often a strict wordcount or running time. That means they can only focus on one thing at a time. It's easier to mention the trial with broad...

But the point is that the study didn't work for any of the patients in the trial (whether CF, CFS or ME) and that's an easier argument to make and back up with the data. It's much harder to say one group of subjectively determined patients is different from another without objective evidence to...

Were the arguments the usual BPS versus biomedical?

FFS.

The BPS model has indeed been hijacked. At its core, it's a political way of looking at medicine. That is, it's intersectional (as we might say today), and considers the effects of discrimination and oppression upon the biological body. People aren't sick in a vacuum, but in a socio-economic...

This is appalling. I hope someone is able to challenge it.

I'd prefer clinicians knowing they don't know enough to thinking they know everything, and then prescribing CBT and GET, as they do here. But yes, it seems most of the European nations are in on the BPS nonsense. The Netherlands, Denmark, Sweden, Switzerland, the UK...