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  1. adambeyoncelowe

    Reduction of glucocorticoid receptor function in chronic fatigue syndrome

    This is also interesting because Klimas suggests GR receptors are involved in GWI. This suggests an obvious way in which they're different. Klimas has said that she thinks stress hormones are more involved in GWI than ME, which makes sense (I think the GR receptor is over-active in GWI so has...
  2. adambeyoncelowe

    Reduction of glucocorticoid receptor function in chronic fatigue syndrome

    Basically, the endocrine abnormalities (cortisol mainly, but others too), and presumably the so-called link to stress as a cause, are overstated. They're probably not causative. The results in some studies, which focus on stress and psychosocial factors, appear to be confounded (confused...
  3. adambeyoncelowe

    Janet Dafoe - The Whitney Plea

    I thought that about the gesture thing, too. It's not authentic to me, so I wouldn't feel comfortable doing it. I think it's important people who are severe can contribute, but I'd find something a bit more 'me' for my own video.
  4. adambeyoncelowe

    Janet Dafoe - The Whitney Plea

    I did. I said it would benefit from people being able to use their own gestures or words. You ignored that.
  5. adambeyoncelowe

    Janet Dafoe - The Whitney Plea

    Exactly. It takes five seconds to Google something. People are always shocked or confused by things they don't understand--that doesn't mean we should never present people with new things. This is meant to be a place of science. So let's be open-minded here instead of throwing rocks at the...
  6. adambeyoncelowe

    Janet Dafoe - The Whitney Plea

    But if people react that way to sign language too then that suggests to me it's about ableism more than anything else. If someone feels uncomfortable with non-verbal expressions, that's their issue to deal with, not Whitney's or his family's. I think the campaign probably would be more...
  7. adambeyoncelowe

    Janet Dafoe - The Whitney Plea

    I disagree. It's a way for people who might not be able to communicate to articulate their desire to get better. It's uncomfortable, but it's supposed to be. It's a travesty that so many people are so ill, and there's nothing (or next to nothing) being done about it except for a tiny handful of...
  8. adambeyoncelowe

    How many hours of sleep a night do you need? - Now with Poll

    I'd get really dizzy and wobble a lot too.
  9. adambeyoncelowe

    How many hours of sleep a night do you need? - Now with Poll

    Me too. I joined the gym twice. Each time, I'd go in raring to get fit and sexy like the gym bunnies in the clubs. And my body was like, 'Nope!' The first day was always fine. But subsequent days were harder and harder. Grindingly hard. And then I'd get the flu a few days later. I was...
  10. adambeyoncelowe

    Janet Dafoe - The Whitney Plea

    They don't need to watch them. Knowing hundreds or thousands of people have done it, though, could be enough of a statement.
  11. adambeyoncelowe

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    Absence of evidence isn't evidence of absence. But in this case, the evidence clearly shows the absence of their brains.
  12. adambeyoncelowe

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    Sorry, @Hip, but the articles you quote aren't evidence of anything. Wessely told his mate the police installed those things and had that data, but there was no confirmation from the police and his friend is now too dead to verify it. Journalists lie or rely on vague wording to imply what they...
  13. adambeyoncelowe

    Re-framing GET as pacing, or vice-versa

    It was clear at the last NICE meeting that the clinicians on my table we're closer to pacing than GET and CBT was more activity management + relaxation techniques. This isn't uncommon. I said they should refer know what they're doing by the proper name, so that we could properly understand what...
  14. adambeyoncelowe

    WHO ME/CFS coding - April to May 2018

    Thanks for everything you're doing here. It really is important.
  15. adambeyoncelowe

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    I've had death threats and abuse, and been physically assaulted. My mum was on Kombat 18's 'Red List' so we got racist death threats and silent phone calls when we were kids. It absolutely happens. But I still don't believe SW. The 'evidence' he provided in that Hanlon article was carefully...
  16. adambeyoncelowe

    Burning heat sensation when seated for a long time

    Raised B12 can cause tingling and neuropathic-type symptoms, but there's some debate about what actually counts as 'high' anyway. You can read more about vasodilators here. Then there's stuff about viagra, nimodipine and choline that may help you figure it out. Clonidine is also used for...
  17. adambeyoncelowe

    Swedish Government: More knowledge is needed to better support people with CFS

    Wow. The ignorance. The wilful disdain. Then the casual racism at the end. He's also wrong on several fronts.
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