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Hoping no one has noticed that won't work for those either......

Thanks for the comments guys. I can't handle more than a few minutes at a time and will be eagerly waiting for the transcript. Your posts help me feel less cut off. :thumbup: Oh, to be there!

Hmmmm....that sounds like they're quoting a doctor @Forbin. Curious.

Fingers crossed you'll get those fees too @B_V. Good luck!

:rofl::rofl::rofl:

Probably not as he's been blocked in twitter.....calling @dave30th.... Now that is very poor form. Block someone on twitter and then make accusations against them they won't see first hand and may not see at all.

The attitude to charities, their members and by extension patients is reprehensible. I am glad to see it so openly expressed though. Sharpe says more about himself in that tweet than he realizes!

A word of warning - the way IAPT is going in this country, other people with chronic illnesses will shortly be joining us in the shiny new MUS clinics.

I would say simply addressing the most troublesome symptoms with whatever meds are suitable and tolerated by the patient. Giving patients realistic expectations and teaching them to pace themselves properly - as patients themselves advise. Supporting them in their attempts to access whatever...

They have always attacked charities, though. Usually, by claiming that being a member of a charity or patient group reduced your chance of recovery. I am really glad to Sharpe being so open and honest. Now the attitude we have faced behind closed doors is out in the open for all to see.

Brilliant! :thumbup: Well done @Graham!

...and it's not as if people aren't aware that David is now crowdfunded. David can't be accused of not being entirely open about that. Unlike some people....

I think you are. The American Sense About Science took a different view, if I'm remembering correctly. The UK SAS were pro PACE.

I would say definitely. Years ago I met a lady who had MS. It was quite advanced. Although English she was living in poor South African country when she first got sick. This was way back when MS was not as well understood. The doc told her he thought she had MS and that she should return to...

Yep. I've lost friends by pointing this out.

Sadly, yes. I have spoken to AfME members who ME patients and they seem outraged at the the whole CBT/GET/BPS business. When you point out the role AfME play, I 've gotten the "oh, I can't be bothered with the politics" response. :banghead::banghead::banghead:

Well, that's hardly the basis of a sensible dialogue on Michael 's part!

I was given the impression amitriptyline was a fairly benevolent drug, especially at low doses. It certainly wasn't for me.

I'm really glad @dave30th is picking up on this. My worry is that, as we are distracted by the sight of PACE slowly taking on water, the next phase of our mistreatment/neglect and abuse is already up, running and firmly established in the form of IAPT. I can just see them saying: "oh well...

Of course there are other costs involved in setting up shiny new IAPT clinics - the cost of employing all these barely trained "therapists" who will have holiday pay, national insurance contributions and a public sector pension. Of course they will be so minimally trained that if the IAPT...