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    David Tuller: Trial By Error: My Letter to Red Whale/GP Update

    ....and just because your behind is on the seat doesn't mean that you are capable of participating fully and taking on board the information being imparted. Edited - spelling
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    Recording of PIP assessment

    I know you've got enough on your plate right now @Kelly, but, at some point, I think this is worth raising with your MP. It looks like they're trying to turn the right to recordings into just another means of spinning our own wheels, while getting nowhere. :banghead: So, sorry they are making...
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    The New York Times: Vitamin D, the Sunshine Supplement, Has Shadowy Money Behind It

    I take it too. Being the type who gets sunburn looking out the window, let alone sitting on a chair outside my back door for a few minutes, in the few years since I started taking it, I've not gotten burnt at all. I'm just gonna keep taking it. Seriously, I've been burnt from being outside...
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    Netflix "Afflicted" - ME included

    . Then add to that the years of being an authority over these patients, in a system where, even if you do get it wrong, the patient will rarely complain either because the complaint process is too difficult, or because the patient is scared of the repercussions.
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    Netflix "Afflicted" - ME included

    I absolutely agree. However, I have 20 years experience and a fair bit of wasted cash to inform my view. The snag, as I see it is that the newly ill have huge adjustments to make. They, not unreasonably, believe that doctors will always have their best interest at heart and that they are the...
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    Netflix "Afflicted" - ME included

    That could have been a ploy to draw participants out and keep them onboard until the end of the project.
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    Unwanted Events and Side Effects in Cognitive Behavior Therapy, 2018, Schermuly-Haupt et al

    I admit I haven't read the whole thing but, And how do we know that therapists haven't under reported, I wonder? It would be interesting to see if, when questioned, their patients would report the same number of SEs and UEs. After all,isn't it what the patient feels that counts? Otherwise...
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    Hormone Replacement Therapy (HRT) and ME

    I would be very interested to hear about any experiences anyone has had with HRT. Good or bad. it's a kinda personal thing so please PM me if you'd prefer.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    One of our problems is not that we don't have valid, strong arguments, we have too.many..... It's about choosing the right one at the right time. I think the BPS politics will have to be addressed, or at least referenced, in the arguments against CBT, GET & IAPT. Otheriwse, if a biomarker is...
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    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    :rofl::rofl::rofl::rofl::rofl: That made me laugh hard enough to induce PEM!
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I didn't like Ricky 's joke either, but frankly I have had much worse said and done by disbelieving or ignorant doctors and people assessing me. This distraction by blaming a comedian didn't work in the past for a prime minister and I'm hoping it won't work now.
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    Video Recorded PIP Assessments...

    I wonder who is responsible for storing the current recordings @Luther Blissett? I had assumed that a contractor would only have access to your data for as long as necessary to process your claim. That the data they held would only be used for the purpose if processing the claim. This is an...
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    Video Recorded PIP Assessments...

    Perhaps the claimant could clearly ask at the start of the (current allegedly unrecorded assessment) if the assessment is being recorded? Presumably, to lie would be illegal?
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    Video Recorded PIP Assessments...

    Sadly, that 's probably one of reasons they're doing it. It won't be for claimants benefit that's for sure.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Perhaps now they can update their treatment recommendations page?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Probably drafting his apology
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Could we, as S4ME, send a thank you email or tweet to Carol Monaghan and all the ministers who took part today?
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Yep. Basically, we need to start again, pretty much from scratch. No point trying to build something solid on rotten foundations.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I really hope they consider that if that is how Sharpe responds to an MP, what it might be like for vulnerable patients whose lives are falling apart and who have nowhere else to turn..... I also hope Sharpe will have annoyed them enough to have chipped some of that deference away.
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