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For the 1st decade it was relapsing remitting but then it seemed to change to primary progressive.

yep - pins and needles - like you I don't get that so much these days. I still occasionally get either numb or burning patches, though not very often. Can happen anywhere, but most often on the thighs. It's amazing how many symptoms I forget about completely 'till someone else mentions 'em &...

Oooh the face twitching. I really hate that. I get it around the eye or at the side of my mouth and it is so annoying! Also I notice that when I overdo it there seems to be an order to things that go wrong: so long before any "fatigue" might set in my fine motor skills go and judgement when...

Normally, if I pace myself properly I'm fine but... Caffeine, epinephrine & related drugs all trigger the shakes. Including local dental anaesthetic injections. If I overdo things then I will get the shakes quite badly. Before I learned to pace myself I even had problems eating & using a...

Well they do say: Bolding mine - what does that mean? A) the patient says "Ouch" when I press this area or B) in answer to the physician's questions the patient clearly exhibits illness behaviour Very vague. Which is why we need adherence to properly defined criteria. I suspect it...

and Perrin technique aside - we have no way of knowing what criteria were actually used to diagnose these patients. If the second quote literally means that a single physician was used to confirm the diagnosis it just means that they fit this individual's idea of what ME is. Bolding is...

Very true. Also strikes me as one of the things that most of the healthy don't get and it takes the newbies a long time to come to terms with (understandably) - what's a year when you've started counting in decades? :( I wish him well. That early on he's got a good chance of seeing some light...