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    (Not a recommendation) Alastair Miller on CFS

    This again. All illness will have a psychological component from cancer to a toothache. However treating an illness as primarily psych is the issue. Try treating cancer (or a toothache ) for that matter with the toxic brand of CBT designed with the CFS patient in mind.
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    (Not a recommendation) Alastair Miller on CFS

    Hmmmm... No, I beg to differ. They are not effective. Can you supply details - actual figures of people who have recovered sufficiently to return to and remain in school of at work long term. Again - we differ: the people who are not being helped by your service or who have been harmed will...
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    Prognosis of ME/CFS – by David S. Bell, MD

    I know what you mean @Dolphin . I know someone who asks me questions about what's going on with regard to research and advocacy etc. She's fairly high functioning and while she is still most definitely ill, she does not actually seem to realize how comparatively well she is. She always says...
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    Appointment with a neurologist

    ....& if you found & took one it would only tell how how you are now. Not how you were years ago.
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    Appointment with a neurologist

    I'm not really sure how you would demonstrate it unless you were tested back then and repeated the same test now. Not sure this would help - unless they made you study and retake the Masters:eek:. I doubt they would know the precise levels of functioning, though they may understand the level...
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    Appointment with a neurologist

    I hope you do see some improvement :hug: I understand your fears 're cognitive function too. I once was very bright and as my cognitive function deteriorates I can seem normal for quite a while to someone who doesn't know me. They might think I'm okay but I am actually accelerating down a...
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    Post-exertional malaise as an outcome measure in any ME/CFS trials?

    Guessing wildly here but wonder if it's worth checking work by Prof Mark Van Ness and his team. Given that exercise is their speciality and they seem very aware of PEM.
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    Prognosis of ME/CFS – by David S. Bell, MD

    Sometimes my cognitive function just simply doesn't allow for even very simple tasks - and I would be unable to cope with donating electronically. Let alone dig out a cheque book etc. Explaining what I wanted to do so my husband could do that for me (on top of everything else) would be beyond...
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    Action for M.E.: New webinar for healthcare professionals coming soon

    I think it might be worthwhile having a thread with a list of problematic training courses from all countries. Many people are still being harmed by this stuff and its horrifying: picture the person as their world starts to fall apart and instead of a reaction of at least sympathetic...
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    Positive and negative affect mediate the ... relationship between emotional processing and symptom severity ... in IBS, 2018, Moss-Morris et al.

    I think they are trying to prove that their wages are worth paying.... ....and I reckon we all have our opinions on that!
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    Article, "Dear worried well, the internet is not your friend"

    Just thought I'd say @rgn007, I hope our comments don't put you off. It can seem a little overwhelming when lots of us chip in on a topic and this topic will always attract lots of opinions, I think. I have met some excellent docs, nurses and admin staff who do great work and I am sure you are...
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    Article, "Dear worried well, the internet is not your friend"

    Well that is certainly true. I know I have found relatively small errors in my notes. Other peoples test results etc I know others who have had some fairly serious mistakes - some notes from a stranger mixed in with theirs, diagnosis of addiction, surgery they'd never had. The lady who...
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    Article, "Dear worried well, the internet is not your friend"

    The other side of this coin is people who don't seek help when they should. Someone very close and dear to me had a history of gastric and digestion problems. They had a lot of heartburn etc. They would have good phases and bad phases and that was "normal" for them. Then they had a couple of...
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    Article, "Dear worried well, the internet is not your friend"

    Hi @rgn007 & welcome! I sympathise with much of what you say. However, I would rather see people being penalized for making appointments and not keeping them - especially if they do this more than once. I think many of the situations you describe might be eased by education and maybe someone...
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    Significance of unrefreshing sleep in IOM diagnostic guidelines

    The whole fatigue/sleep thing is confusing and, in my opinion, is too broad a definition. For me sleep doesn't make me feel better. I feel absolutely , shockingly awful after a sleep, even if it's been undisturbed. Gradually I warm up to the more usual levels of awfulness. However, if I...
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    Trial By Error: Bristol’s Complaint to Berkeley [Short Tuller blog 23rd December 2017]

    Eh? Well, I suppose if not answering his (reasonable) questions, then accusing him of libel, pretending to have sent him legal letters to cease and desist (from being entirely reasonable & doing his job) and finally trying to get his university to rein him in doesn't work......let's get someone...
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    Article, "Dear worried well, the internet is not your friend"

    A friend of mine has fairly severe RA. Out of his family one parent and another sibling also have severe RA. He felt aches and pains but and thought he needed to rest up. So another couple of months went by before he consulted his GP. His GP then faffed about with this and that before...
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    Article, "Dear worried well, the internet is not your friend"

    Yes, it's outrageous and yet at the same time it would seem patients are supposed to triage themselves. Do you: 1. Just need pharmacy advice 2. Need to call 111 for non emergency medical advice ( but they can't advise on medication) 3. Should you go to a walk in clinic for minor injuries and...
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