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Demand for thyroid hormone and thyroid output fluctuate. Nowhere near as rapidly and as markedly as insulin demand and production, but a similar idea. It could be the NDT was no longer making a noticeable difference because you were no longer taking a therapeutic dose-possibly because of...

In the tent.....out of the tent...... Let's just get rid of the tent!

:hug: @Squeezy! People who make "helpful", uninvited suggestion on how I could get better really p*** me off. Really? Before becoming ill I was a sensible adult with an intellectually demanding career and a mortgage and a life. I've also had 2 log decades to have a think about it. Have a...

I think the poll has been a great idea @Sly Saint :thumbup:. I was very surprised that some people have very little pain while some of us have a great deal of it. I am sure that people who have low pain might experience other symptoms that I don't have it have very mildly. Also the discussion...

To be honest at times I think it's easier to have it myself than it would be to see my child go through it. Sometimes I find myself just trying so hard to simply exist that I don't have the additional resource to think too hard about it. Harder again to have it and have to watch your child...

Welcome @Chris. I don't think you're alone in wanting to know why we crash and how to stop it.

I'm late to the thread but really hope this improvement continues for you @Woolie ! As far as I know I don't have raised CRP and I was prescribed zantac for gastric problems. It didn't help the gastric problems and made no difference to my ME symptoms either.

Morning! I'm not the only insomniac tonight then @Wonko :(, It sounds like maybe something that should be checked. Hypothyroidism can cause low temperatures. My temperature is generally slightly low even on medication. I don't bother checking my temp regularly anymore but when I suddenly...

Like most other people I have used paracetamol and ibuprofen individually. Occasionally, when they weren't enough on their own I was told to use both together and they were pretty effective. However for certain types of pain - migraines for example they just don't work even taken together...

Of course there's also the intermittent sharp, stabbing eye pain and stabbing ear pain too....(both been checked).

@Allele - no idea about wheelchairs I'm afraid. I'm sure others will be able to advise. However, if you can't put you legs up in a wheelchair then wearing flight socks while in it might help. If I have to go out I find them quite helpful especially when I am being driven for any length of...

And a number of patients believe that those doctors' opinions are contingent on continued career progression, funding and influence given as a reward by the likes of govt depts and insurance companies. Bolding in the quote is mine.

.... & failed so spectacularly that one could be forgiven for wondering if it had failed at all or if there were ulterior motives at work.....

From my experience pain & ME is a complex thing. I get all the types of pain listed but not all of the time .....apart from the general background type and the random pain. The others listed are PEM related for me apart from the skin pain. However, in my personal experience, ME fluctuates...

@Subtropical Island - my tuppence worth is that just because you have managed some control over one symptom does not mean you are cured or no longer have ME. You are simply symptom managing, which is all we can do for now. In my own case, I was diagnosed with Hashimotos. I have had someone...

Wherever it came from this document makes a point of mentioning Alistair Millar's role in AfME. It would be interesting to hear their opinion on this document and whether they support the claims made in it.

I don't know any studies into this @Barry . I can say that, in the early days, at the stage when I could no longer pretend to myself that how I felt was "normal" I relied on medications like paracetamol to try to control pain and prop me up. It was only when I realised that these meds weren't...

Someone with a severe cold recently came into the area where the Invisible Man works. They coughed, sneezed & spluttered all over the place. Virtually everyone there asked them to go home. Nope. Sat there doing naff all and infecting everyone. They had promised a manager they would cover a...

When you think of all the trouble they have freeing up hospital beds with people who do not actually need to be in hospital but cannot be at home alone, then convalescent homes seem like a good idea. This rush back into activity is a plague of the modern world as far as I am concerned. Those...

Seeing the word column makes me wonder if this was written for some magazine or journal or something ...