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  1. I

    How to deal with Unexpected stresses

    I'm glad he's well enough to go home. Hopefully you both get plenty of rest now. :hug:
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    Issues w/nausea in PEM

    At first I used to get the sore throat thing a lot. Then it stopped. Now it's back. Even a small amount if chatting and I soon start to sound like a chain smoker. Just overdoing it generally can trigger it, too. Nothing triggers it as fast as talking though. Being upright too long, the...
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    Concerns about Cochrane

    In the fast pace (sorry!) of the modern world it seems to me that people think that being informed is simply asking the opinion of someone who appears to be influential in the field. Now, I can understand in some fields you would need many years of education to truly understand specific...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Well. I've been through two decades of him and his ilk using their position and education to make wild assumptions about me, based on how I behave when my life has fallen apart because I'm sick. My motivation has been thoroughly questioned. I think it understandable that we should weigh his...
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    United Kingdom: ME Research UK (MERUK) News

    Yep. Wish I could like that post more than once.
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    How to deal with Unexpected stresses

    :laugh::rofl::rofl: When still working I used to have to go to various clients sites around the country, sometimes alone and sometimes I'd be with a colleague. at one site a woman with a really broad accent turned to me and announced loudly "You'm in'arv gotta funny accent, you'm 'ave!" i...
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    How to deal with Unexpected stresses

    I completely understand the conversation the thing. It's so much worse with people I don't know for a start, they will insist of talking quickly, mumbling, talking over radios (especially in taxi). Then if they have a strong or unfamiliar accent ..... I don't mean a foreign accent here - any...
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    How to deal with Unexpected stresses

    :hug: that is so hard @Hell..hath..no..fury... . I hope they work out what's wrong soon and it's something they can sort quickly. It's so frustrating not being able to be there in the way we want/need to be for our loved ones!
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    Whether to have a flu vaccination

    I am at fairly low risk of developing the flu. However some of my husband's work colleagues have kids and come into work spluttering and sneezing. Catching the flu, although I may only have fairly minor symptoms for a few days, usually triggers an ME "crash" lasting a good couple of months. I...
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    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    A questionnaire I was asked to fill in phrased the sex question something like this: "How often do you enjoy sex? " My response was along the lines of - "question is unclear, do you mean 1) how often do I have sex? or 2) how often do I have sex and really enjoy it? Because those two...
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    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    Right. So where you tell 'em you can't work, but want to You can't socialise, but want to You can't peruse hobbies, but want to Most of your relationships have broken down isn't enough? Discussing your sex life, or lacking it will add to that? What if you're single, have taken a vow of...
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    Review: Chronic fatigue syndrome and quality of life, 2018, Roberts

    i have been asked about my sex life before in questionnaires - the correct answer is... Mind your own bl@@dy business.
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    An Introduction To ME By Dr Hng

    My GP barely has time to listen to my health issues (even though I only go in with one thing at a time when I absolutely have to), never mind time to read about someone else's.
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    “Guidelines for ME/CFS outdated and dangerous”

    Sadly, these days she also needs to add central sensitization to the list. :( Although why "they" keep coming up with new theories to promote a therapy when that therapy clearly doesn't work is beyond me.
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    #MEAction Scotland News

    Well, they do have form for that!
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    Bridging Exercise Science, Cognitive Psychology, and Medical Practice: Is “Cognitive Fatigue” a Remake of “The Emperor’s New Clothes”?

    Perhaps they should just stop and recognize that fatigue as a subject is too broad. Instead of trying to find common areas to address in all patients with diseases who have an ill defined "fatigue" as a symptom, they simply tackle the underlying problem? They would do better, in my opinion, to...
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    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    I know it was asked of @Graham , but I definitely experience this & some places are worse than others. I tended to put it down to my brain trying to filter out the background noise, the artificial light, the mental effort involved in keeping your balance while not bumping into people..... The...
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    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    From my scan of it that seems relevant. My consultant tried to.out it down to lack of concentration, but I always correct him and explain that is is more like a processing issue.
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    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    I don't know if this is the same thing - when I've really pushed my luck I occasionally experience a tiny delay...my leg moves, but it's almost as there there's a slight hesitation and I notice it, rather than I need to focus in it to get it to move. Like @Jenny TipsforME says, if my legs are...
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    Myalgic Encephalomyelitis (ME) or What? An Operational Definition, 2018, Frank Twisk

    For me, no. I do still occasionally drive, under supervision if I haven't driven for a while, but I avoid conversations and can't play music or the radio. It's not the control of the vehicle that's the issue - I used to drive a lot as part of my job and was used to hopping in and out of...
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