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:rofl::rofl::rofl:

Yeah. I remember Wessely saying somewhere that they had to broaden the scope otherwise no one would have recovered. But was that about criteria of about lowering thresholds. Your post is ringing bells,but I can't quite remember either :banghead:

Just saw it hit 2,145....

I don't understand this.... Humans are a large group. Men, women and children are subsets. Are you saying that because men, women and children are part of the human population then all attributes of humans apply or should be assumed to apply because they are all human? This seems wrong to...

Thanks @ Graham. I've been mulling this over and struggling. I see what @Jonathan Edwards is saying. From the sound of things using wide criteria is done elsewhere in research. It doesn't in itself necessarily cause problems. The problems arise in the application - ignoring and failing do...

Here a link to download the PDF: http://www.ncf-net.org/library/Reporting of Harms.pdf ETA : Is this in our library @Woolie ?

I see what you're saying @Jonathan Edwards but....common sense approaches.... I don't see that will be any different what we have now - until we can demonstrate that exertion (even extreme!y mild exertion) in some cases is enough to worsen the condition.

And here we have an issue: Are the good ones, using CBT as a support and adjustment therapy, doing so on the quiet? Are they doing so knowing it isn't actually what the guidelines mean and want to keep their heads down in case someone notices and demands they inflict the toxic kind?

How true. The new normal in terms of cognitive function is definitely much, much lower than normal. On a very good day, it is still much lower, but a marked improvement in my New baseline. Then there are the bad days :(

In my own case, I have found myself discussing PACE with docs in the past. You know you go to see someone about something totally different and, wow, they've got an opinion about ME and would much rather discuss that.:rolleyes: At the moment you'll get: but this has been published in reputable...

The snag is I often forget the symptoms till someone says or describes something and then think: "Oh, yeah! That happens." Sometimes I've been in the phone when my husband comes home. He sees me chatting and wanders off. When he sees me again not 5 minutes later he might ask who was on the...

Not sure it was available at the time or if it was I was unaware of it. Tom's paper worked nicely ,thank you. ETA - Unrealized that sounded a bit st after I hit the post button. Not intended that way. The thank you was,again, to Tom. Also I needed to answer in relation to PACE 'cause that's...

I remember @Tom Kindlon put a huge amounting of time and effort into going through the MEA survey about PACE and the people whose conditioned became worse because of it. I know he posted about it on other forums. Also there is Tom's paper on the under reporting of harms in PACE. When I had a...

Actually, now I think about this a bit more ...... There are controversies around PACE but I think everyone has gotten to the stage where they can see that PACE does add to the debate. It contradicts the previous studies because It pretty effectively shows there is no real benefit to CBT (PACE...

Now let's hope they have an open data policy....

Same circular bullsh**. CBT & GET were the treatments they wanted to inflict. There were some not great & rather subjective trials. NICE were recommending CBT (PACE style) & GET, but the only evidence they had were rather poor trials. The PACE trial was supposed to shore up the previous body...

The odd thing about the getting lost in familiar spaces while driving - I was still driving competently when this was happening. Driving skills are obviously very different in terms of brain function. I very rarely feel up to driving these days and if I do drive it's normally under...

Just signed. The numbers are going up as you look at it. 1,450.....

Sure. My husband is like that. The most useless navigator ever & he even admits it himself. I was the opposite though and on a good phase am still ok or not too bad. When PEMed I'm worse than him though!

I read this with a sinking heart. Sometimes I wonder if they actually set out to downplay the condition.