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The people I know who have had NHS CBT at a CFS service and found it helpful, when I enquire further, all seemed to receive support with coming to terms with being ill and adjusting to it. Not the PACE version of CBT at all.

The problem with letting this situation remain, as I see it, is that some of them are actually implementing it as per PACE, and push on with it even when they see this approach is not right for the patient.I How does the patient know which clinic is which? Even if we did most of us can't...

Errrr...no, Mark Baker We have people, especially in the South West, who are being pushed by their GPs into CFS clinics against their will. They are literally blackmailing the patient - if you want to continue with medication for another co morbid condition you will have to be reviewed by the...

The one thing I can be sure of....if it's supposed to make me sleep I'll be wide awake the whole flippin night. :(

I think it's pretty old too. However, the fact that it's still up there indicates that they believe the information for is still current. That or they are not keeping their web site updated - which seems unlikely. Eta - crossed post with @Trish . She types quick!

Yeah. Those dental injections with adrenaline *shudders*. The ones without so much better. Especially on top of the effort of actually getting to the dentists and then home again.

Can I respectfully suggest a title amendment @Valentijn ? Proposed subtitle: How to Paternalistically Manipulate Your Patients for Their Your Own Good

I think predisposition is at play in my case too. I've had lots of mild allergies since I was a very young child. Food, soaps, shampoos etc. I didnt really need much by way of medicine so I don't know if I reacted before. I do know that some medicines I did take, I suddenly stopped being...

Sometimes yes, sometimes no. For me there are phases to this condition that are separate to PEM. There a good phase (a rare thing now). When it seems quite stable and I can enjoy small yoga type exercise & very gentle walks. There is the downward phase where no matter what I do my condition...

I only seem hyper sensitive to certain meds. Others, I seem to react as normal. I am really, really sensitive to SSRIs and amitriptyline. Even in the tiniest dose. I cannot handle anything with adrenaline or adrenaline based compounds such as epinephrine at all. Funny you mention beta...

:thumbup: :thumbup: :thumbup: :thumbup: There is no reason why the medical profession can't be truthful in a sensitive manner. When I was diagnosed I had a very demanding job with sometimes long and unpredictable hours. I was the main breadwinner. For me, managing my expectations would...

Things that are likely to make it worse or trigger more easily for me: Standing or sitting in a chair with with my feet in the floor -feet raised or lying down is much better High temperatures Background noise - especially people talking PEM Allowing myself to get too hungry Not drinking...

The UK System Healthcare UK healthcare is currently provided free of charge at point of service by the National Health Service (NHS). It is paid for through compulsory contributions deducted directly from wages. The doctor who handles routine health care is called a General Practitioner...

@MErmaid & I recently confused each other talking at cross purposes because the US medical system is so different to the UK system. So we decided to create this thread to provide a simplified overview of our own health and welfare systems and the terms & acronyms frequently used when we talk...

Dunno he can be a grumpy git...:) But, to be fair, he has had 20 years to get used to it. It took him a long time to understand that how he handles it can make a big difference. Becoming annoyed with me when I'm like that only makes it worse. It's in his own best interest too.

I think this is where I have been confused as I haven't considered Oxford as a superset but as a large, loosely defined set where there are some common members with other separate sets such as ME. As far as I can tell I would have been excluded from Oxford, even though there is little doubt...

We both got there in the end @Sly Saint ! Thank you! :)

Done. Quick & painless.

Here you go @Alvin

Wracking both brain cells... I'm sure it's on s4me somewhere already. The quote might be to do with outcome thresholds rather than criteria tho'