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As @Ryan31337 suggested Biolab, I thought I'd throw in my 2 cents worth. I had professional help with digestive problems and they used Biolab. I had to pay, of course. They seemed fine. When it comes to lab testing it is very easy to spend money on the wrong test, or to have the test done and...

Ah, OK. I read this as PEM including physical, cognitive issues and emotional distress, rather than caused by. I was a bit surprised.

I admit to on!y reading the abstract but: Is it normal to experience emotional distress as part of PEM? In the early days I got upset because I just couldn't figure out what the hell was happening, but this was a consequence of PEM not part of it. Nowadays, it naffs me off, but I don't find...

I had IBS long, decades, before I developed ME. Once I developed ME, I researched and learned more about my health and in doing so got my IBS under control. I still have ME though. They may be related and they may overlap for some, but they are not one and the same, in my view.

Yet they like to special status to preview articles and have special rights to reply in journals.

Just an aside - slow release melatonin is the only one that helps me a bit. I can still sometimes find myself wide awake in the middle of the night, though. Everything else makes it worse. Sounds like you were going through a really tough time @oldtimer, hard enough without additional side...

I don't know if this helps.... I have an issue with drugs that supposedly make you sleepy. They wake me up and I also seem very sensitive to hangover and side effects, plus even worse sleep of course. I also had bother with SSRIs and amitryptiline - severe side effects. One thing I noticed...

I know of someone who had aids and grab bars etc. around her home. Suddenly, the advice was that ME patients shouldn't have those, despite her being assessed as needing them in the first place. So, instead of just leaving them, they showed up in a van and removed all the aids from her house...

The Daily Mail article quotes him: So an interpretation of this quote I assume. Edited - the text quoted do seem to heavily imply behavioural therapy will do the trick.

I detect a pattern with some of these folk such as Vogt and some of these twitterers: They seem to believe that their own subjective experience is a Universal Truth applicable to all mankind. It strikes me as some sort of psychological issue where they need to put their own experience above...

A quote from @Sasha 's link: Well, quite. the muscle tone of someone under anaesthetic will be very different so it won't really be what a normal exam would feel like for the doc either. A sedated or anaesthetized person isn't going to say: "Ow, that hurts! Which vet school are you from?"...

I got tinnitus very young. My mother used to tell me off because I'd get up in the middle of the night, sure the TV had been left on. In those days when the channel went off air they transmitted a high pitched noise. Or maybe the fridge door was open..... Eventually, I learned to live with...

That's awful @Allele . :hug:. I had the heeby jeebies and everyone treated me with absolute respect. How can they possibly expect you to have any trust of faith in them if they behave like that?

That's just it apparently, @Trish, they don't. The patient victim is completely unaware. No respect.

I think the day may come when this type if evidence proves useful.

I think the link @Andy posted was a link from the facebook page to the MERUK page, rather than to facebook.

WTF? I had no idea they did this! Well, if some see this as being ok, their attitude to women with hard to diagnose conditions is hardly surprising. I wonder if this happens in the UK too?

This is precisely it. We need to wake them up to the fact it could be them. So far the BPS narrative has encouraged the general population to consider us to be psychologically and emotionally weak at best and malingerers at worst. This has prevented the ordinary person from identifying with...

Patients know their individual stories, but doctors must surely be aware and feel some shame/embarrassment/stupidity when they've brushed patients off repeatedly only to eventually find there was a real problem after all. To discover that their own attitude has caused needless pain, suffering...

Ah. OK. I was diagnosed as moderate and then deteriorated to severe so I don't know what mild might be like and didn't want to assume.