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Full text. https://sci-hub.tw/10.1021/acsinfecdis.9b00096

Wow!

I just emailed this ...

Still trying to get the science right I expect. Still not long enough.

Unfortunately outsourcing of IT and lots of other technical services is rife in many industries, as the bean counters believe the savings these service providers blind them with. Not uncommon for things to come to a horrible crunch, then the work gets pulled back in-house again as the hidden...

In fairness quite a bit of the delay could be more bureaucratic than technical, given there are third parties being relied upon to implement things. I expect the bureaucracy card might be getting a bit over played, but I think benefit of the doubt might be in order here ... providing the...

Bearing in mind I'm neither scientist nor medically trained, something I have wondered is if there could also be a benefit to studying mild/moderate patients, given they are much less likely to suffer from secondary conditions, especially deconditioning. In which case would it be much more...

Am I right in thinking S4ME also double checks if multiple users originate from a single IP address?

What if there are some risk factors common to both ME and EDS, even though some people might never suffer from either? This is pure conjecture here, bearing in mind I am neither scientist nor medically trained. What if there are some predisposing factors unique to ME, other predisposing...

Wayback Machine is blocked from saving, but I've done my own local save of that article and the three comments.

Precisely. ME is not perpetuated by unhelpful beliefs, and cannot therefore be fixed by changing patients' perceptions of their illness. True no matter where the physiological reason turns out to be, including if it is the brain.

I've not yet watched this short film, but thought worth posting. http://www.swlondoner.co.uk/this-is-me-filmmaker-josh-pickup/?fbclid=IwAR0IeyS1em83GQQmi8bi_m3WNYlrivH0yxxEQoZqiRZQ6nEfSxhFfsPC9cI

I agree. My wife actually pushes herself hard within her limits, but she always seems to understand those limits well. My impression is she typically pushes herself to the edge of PEM and maybe into it slightly, unless external circumstances (family visits etc) mean she gets loaded further, then...

Just chipping in on this bit. For me a crucial thing, is that when unqualified people write something where there is any chance it could be misconstrued as being written by someone qualified, then they should make very clear, on a per-article basis, what the limits of their qualifications are...

Just to clarify, it's p13 as per normal whole pages, but sort-of-page 17 as indicated in the document itself. I got a bit confused.

Agreed.

It really does seem there should be a specific care path for those whose condition remains undiagnosed, rather than the health system basically giving up. Specialist units for those still undiagnosed after 1 year or 2 at most, with at least the medical insights to know what other specialist...

In which case the SMC-only arm was useless as a control.

Another thought on PACE, and probably other trials. Given it is often ethically unacceptable to include a control arm having no treatment, each arm therefore has one of the interventions plus SMC (standard medical care). But what about the case where SMC actually conflicts with the intervention...

In principle it is a way of getting government officials to formally state on the record their response to the questions asked. It does of course depend on how carefully the questions are framed, and how adept and determined the officials are at avoiding the questions or passing the buck to...