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  1. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    What am I misunderstanding here. To me the first sentence seems to be saying all the participants had an anxiety score > 18 and all had CFS. The second sentence see to be saying the same thing except 42% not 100%. I know I'm misreading this but not sure how.
  2. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Wording is a bit fluffy, but to me the target date pertains the the decision. If it relates instead to it having been through the editorial process, then it's down to how good they are at making decisions.
  3. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Yep. And PACE will be retracted; NICE will withdraw GET and CBT from the current guideline, MS & EC will sincerely apologies to PwME and promise to put things right; the SMC will apologise and start reporting everything honestly; and my backside will fit into trousers with a 30 inch waist!
  4. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    True, but I think we must be past the cut-off point for seeing anything on the 29th? ETA: Ah, a bit slow. I guess that's the point you are making :).
  5. Barry

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    "which we anticipate will be towards the end of November 2018" Maybe the scale is in milliseconds.
  6. Barry

    New Website on Severe ME

    Excellent. Good to see you here @Naomi10 :).
  7. Barry

    Cochrane ME/CFS GET review temporarily withdrawn

    Yes, I noted long time back that "the taxman" invariably seemed to send bad news timed to arrive on a Friday, so you had to stew (and maybe cool down?!) over the weekend before any chance of talking to them on Mon.
  8. Barry

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    I can only guess they are including the 'recoverers' amongst the 2/3 who improve? So 1/3 do not improve (so how many get worse?).
  9. Barry

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    Yes, I do very much appreciate the comments will have been made in good faith, not suggesting otherwise at all. I just feel that these charities must have the connections needed to double check the facts before reporting as facts. Because those statements very much were counting chickens before...
  10. Barry

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    I have to say I'm extremely disappointed with #MEAction and the MEA, because I took what they said in good faith (as did @Sasha very reasonably), and posted this very encouraging 'news' to a FB group where hope, as always, can be in very short supply for PwME. I now find I have been the purveyor...
  11. Barry

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    Given that so many people do not recover, might it also tie in with the possibility there could be something fundamentally different with those who do recover?
  12. Barry

    When a Placebo Is Not a Placebo: Problems and Solutions to the Gold Standard in Psychotherapy Research (2018) Blease et al.

    Can't help thinking that the psychs have gone off half cocked for years presuming they are doing RCTs and making big claims to that effect, when in fact that have not. Feels like they, and maybe trialists from other disciplines, need to get round the table and work from the ground up to work out...
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