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  1. Barry

    Review: CFS book by Nick Duerden

    And if so, what with. Might end up a very useful case study on misdiagnosis, and how that maybe leads to supposed treatments being useful/dangerous for real sufferers of ME.
  2. Barry

    World ME Alliance, was previously IAFME: International Alliance for ME

    Can't help noticing the AFME part of the IAFME acronym ... just coincidence I expect.
  3. Barry

    World ME Alliance, was previously IAFME: International Alliance for ME

    Especially if it indicates they see their castle is crumbling, and are deciding to abandon anyone left inside. But usefulness and trust are not the same thing. Good if they are being useful, but doesn't mean they can be trusted.
  4. Barry

    Wesselys Mental Health review could also replace Mental Capacity Act

    Link? Or was it TV/Radio? I'm guessing he's being congratulated for saving the NHS pots of money by denying people much needed medical help under the guise of helping get people back to work and off benefits. Etc.
  5. Barry

    David Tuller: Trial By Error: BMJ and Bristol's Ethics Exemptions

    You could well be right. Their lawyers almost certainly insist they admit to absolutely nothing, especially not in writing.
  6. Barry

    Trial By Error: Some Good News on Cochrane, David Tuller

    Yes. An objective review would show that the evidence for efficacy and safety of exercise therapy for PwME is extremely poor. Reviews should not only be done to prove how wonderful an intervention might be; let's have some reviews that show it how it really is.
  7. Barry

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    This strategy can be far more effective when faced with very potent opposition. The point is that with each small advance, you dig in and consolidate and hold that ground. One all or nothing offensive is very high risk, and is the sort of thing the BPS opposition are very adroit at...
  8. Barry

    News from Cochrane

    And provided Cochrane do not do an about turn on this, then the implications for the new NICE guideline will be very significant, as well as for Carol Monaghan's HoC debate if she manages to get it. And given the politically driven moves afoot to slide MUS under the radar of good science, and...
  9. Barry

    News from Cochrane

    We could have an interesting juxtaposition emerging: Cochrane reclassifying ME/CFS such that it is no longer within the Common Mental Disorders Review Group. Larun's existing Cochrane ME/CFS exercise review withdrawn in all but name, which was carried out by members of the Common Mental...
  10. Barry

    A general thread on the PACE trial!

    Who does take responsibility then, and formally provide such approval?
  11. Barry

    News from Cochrane

    Or maybe a month ago. Either way it's recent. https://cmd.cochrane.org/news/google-hangout-ketamine-mood-disorders
  12. Barry

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    I would like to think that Cochrane may be learning from this experience, that standard responses tend to be rooted in emotive dogma rather than sound science. With a bit of luck they will be as p*ssed off with being treated like that as PwME are, and maybe gained some insight from it. The fact...
  13. Barry

    Cochrane's plans to update its COI policy

    You should not be so rude @NelliePledge ... to the many very decent horses there are in the world :).
  14. Barry

    Cochrane's plans to update its COI policy

    @TiredSam's comment was tongue-in-cheek I'm certain, as he also will be very aware who the bell ringer was.
  15. Barry

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    Where actually is the note? Interesting to see they do openly credit Robert Courtney. Basically the authors failed dismally, Cochrane now know they cannot get away with a whitewash, and this is their version of "the withdrawal method" :p. It's sh*t. Nice ambition. Interesting ambiguity...
  16. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    That's what I was chasing down, but decided it may not be such a big deal. The score of 18 for SHAI is as they describe, just in clinical range. i.e Just out of the no-health-anxiety region. So they took a sample of people with CFS having at least some health anxiety (which I felt would likely...
  17. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    Without objective measures for both entry and outcome, claims of PF improvements are nonsensical.
  18. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    From this ... http://www.archivespp.pl/uploads/images/2016_18_3/68Kocjan__Archives_PP_3_2016.pdf ... the SHAI scoring looks to be ...
  19. Barry

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    No, there were at least 6 sessions, but don't seem to say how many total. Only that 2/10 pulled out at session 6.
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