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Yes, the BPS folk have never denied a potential physiological initial trigger condition. What will really count is what this research deems the perpetuating factors to be down to, which they have always said is down to unhelpful illness beliefs, blah blah.

Let's hope this can be trusted, given KingsIoPPN => Kings Institute of Psychiatry, Psychology & Neuroscience.

So a 10% difference on subjective outcomes for improvement, from unblinded treatments.

This is probably the best indicator of how fatally flawed it is to have the word "fatigue" as part of the condition's name. And why this group of people were so determined to have PwME labelled as having Chronic Fatigue Syndrome ... all about patients' perceptions of their illness, thereby...

Am I right in thinking that even those numbers took no account of the (notional) control arm results, effectively inflating those numbers still further?

Although there is some validity to that, I should have thought the changes could have been normalised to a fair degree, given that employment market changes would be pretty well understood. It's way beyond a cop-out. It's a blatant admission of the presumption that a person's lifestyle and...

No, actually when I re-read it, it is highly ambiguous! :D.

That sounds pretty significant, as well as clarifying the Cochrane issues with ME are by no means unique. Unless Cochrane buck their ideas up pretty fast, their name is going to slide ignominiously and irretrievably into the gutter. And only themselves to blame.

This would be the same as for my wife (the one with ME). To me what you describe fits with both what you and I say. Note I am not talking about muscle weakness per se, but simply about restricted energy flow into those muscles. The difference is subtle, but crucially different. A damaged car...

Although many here will already be familiar with this, this is worth keeping in mind ... Includes comments from PACE participants, including one I only just tracked down again, where it was suggested the heart rate readings not be recorded as they had to be wrong.

I also wonder if this is why the PACE authors so ardently refuse to release the rest of the PACE trial data. I think it is very possible that hidden amongst that might be more evidence of harms, and/or evidence of what we know to be harms but they likely dismissed as outside their definition of...

What value do actometers actually measure (rather than any inferred measure)? Is it energy expended over time? Or something else? And it may also be that if actometers are not always different from controls versus PwME, then that just might indicate misdiagnosis?

But what you describe here is different to what I'm talking about ...

To my medically uneducated brain, there is a rational explanation for this. I think the sensation of 'heaviness' relates to the body's capability to apply energy at the required rate (i.e. required power). If you go to lift anything, a bike say, and you are fairly fit (powerful therefore), the...

'Liked' Anita Vandenbeld's FB post.

Not sure if this comment risks derailing this thread, or alternatively if it might be very relevant - mods decide please. How much good evidence is there that the deconditioning hypothesis is itself unfounded and invalid? Because surely any treatment for any condition, whose use is premised and...

Especially regarding ...

Clearly essential, to help overcome the false belief that jumping out of an aircraft in flight can result in physiological trauma. A crucial part of the course is to jump up and down three times after landing, shouting "There, see! Who needed a parachute! I'm not a going to be a dollop of...

That is so very true.

I think this needs to include cases where "harms" have been inadequately defined, though I appreciate things can get a bit nebulous. But it's no good excluding harmful effects unless the person actually drops dead, or close to. One of the major problems is that PwME can be harmed by GET, but...