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I think a lot of psychiatric conditions are about people having distorted self perceptions. So psychs live in a world where the way to cure their patients is to change their self perceptions. And the way they assess their patients' progress is to ask them questions which reveal their prevailing...

For anyone wanting additional options to select, I would think it essential to therefore also tick "Other" and follow it up with a brief survey-length answer as requested in the survey. If that is not done then the results will be skewed.

Or design cars, or aircraft, or power tools, or anything ... oh dammit, they seem to think they can design trials :wtf:

Encouraging. A key issue is to ensure psychiatrists have no overbearing influence or oversight.

I think we need to work on how to convince people of the how flawed it is to combine subjective outcomes with unblinded trials. There is clearly a good deal of convincing still to do. I seem to recall @Jonathan Edwards saying some time back on PR that quite a few people took a lot of convincing...

Keen to see the full article, which is open access I see,

I think I heard a good while back that much of 'journalism' now is not the real thing anyway. Financial constraints provoking a race to the bottom in terms of professionalism and quality, relying mostly on 3rd party sources without validating what they are regurgitating. Thankfully there are...

I don't entirely agree, because outside of ME advocacy groups most people are not primed, and will be able to see Stuart Murdoch's comments about being positive simply for what they are, and read nothing more into it. He makes it very clear there is no cure, and that symptom management and...

Agree entirely. Being positive has many shades, often for the same person in different situations. Sometimes its a bl**dy hard grind and sheer pig-headed obstinacy; often it doesn't feel like being positive, but to others looking on it clearly is.

I like the way this disputes earlier research findings, that interpreted lower heart stroke volumes and output as being due to deconditoning, thereby feeding the whole "unhelpful illness beliefs" BPS pantomime. If they are right in saying "The decrease in SVI and CI were similar and not...

Responses to deleted posts Yes I agree. If ME were an illness where scientists and the medical profession had done everything right by PwME, I don't think anyone would have any problem with someone promoting the benefits of staying positive. My wife certainly strives very hard to stay positive...

On the one hand I agree with @Dolphin that retraction might lead to a useful paper being "lost" to further studies, but I also see that there is a point of principle here, and we cannot really be asking for retraction of other ME/CFS research due to ethical oversights, yet skipping ethical...

If you save it first then it can be opened from disc. I had the same problem.

My wife is mild/moderate, and the idea of doing extra exercise to improve fitness is a complete non-starter. She pushes herself hard to her limits, and it is much more about doing us much "normal living" exercise as she can manage, whilst avoiding severely degraded fitness. I think my wife is...

Actions not words, is what comes to mind.

I can empathize with this a lot, given it is my wife who has had ME over 10 years now. When we first found out and saw a specialist, we were completely in his hands, and believed all he said and recommended. Thankfully he was very aware I think, and advised my wife she was already doing all the...

Up until now it seems there has been - just follow the BPS line and classify everything and anything not yet understood as a mental disorder. Suits money-conscious politicians, empire building psychiatrists aiming to please politicians, etc.

I suspect political influence very much extends to "assisting" their chosen favourites to take up influential positions in politicians' chosen organisations.

Given that so little is still known about ME, it is probably easier to identify the groups / sub-groups that ME does not belong to, than precisely where it does belong. One thing is absolutely for certain though: ME does not belong in Common Mental Disorders! That alone illustrates everything...

"self-plagiarism" is an interesting term, and is akin to what so many of the BPS club do; cite their own and close colleagues' work to give the impression of independent validation.