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Moved from the Long covid in the media thread Just read a tweet in my emails so please excuse presentation. Jennie Spotila has just posted "Gosh! Lookit that! NINDS is funding clinical trials for #LongCOVID! Wow! And all these years they’ve been telling the #MECFS community that they...

currently, both sides of neck, left more prominent.

I had an anaphylaxis at the end of 2019, when I was 72, a reaction to eating a satsuma ( no previous reactions to any food, tree, pollen, just out of the blue). Was in hospital for 5 days, treated with steroid tablets which initially wouldn't go down because my throat was so swollen, and...

Done. Go well @dave30th .

Moved post My own comment relating to blood clotting is a personal story that rests on a comparison of my ME symptom response to long journeys. I realise that it is only my story but it has given me cause to wonder about blood clotting in relation to ME. I am currently in Cornwall just...

Moved post There is a letter in the Observer today ( hard copy, page 50) from White, Chalder and Sharpe which needs a (sharp) reply. It is in response to something written by Ravi V eriah Jacques. Headed "Long Covid: does rehab work? ........ " But we disagree when he (Ravi Veriah Jacques)...

@lunarainbows - I was prescribed compression garments at hospital for lymphoedema and lipoedema. Firstly I had prescribed by the hospital up to the waist tights for about a two to three year period. My blood pressure at ankle was never measured but each leg was separately measured and marks...

My dentist has sent an email saying that full covid precautions are being maintained for the time being. That means waiting outside until shown in when temperature is taken and sanitiser provided; hands to be washed with soap and water on entering treatment room. Masks to be worn of course.

https://www.thenorrislab.com/research/ehlers-danlos-syndrome Another link to the Norris lab who are doing the research on hEDS but I can't see a link to an article on the genetic basis of hEDS. There is a more detailed 2020 article on hEDS which I haven't yet had the time to read fully but it...

Me too. The variation in responses is interesting and perplexing. I can't help but envy those who have straightforward responses and an easy decision to have the next vacccine. I am due my fourth vaccine but cannot face it after three very different significant adverse responses. Fortunately my...

Thanks @Kitty. I'll have a think.

Are you insured if you were to accidentally damage a third party @Kitty. No aspersions on your drivingbut since I am out in my chair more often, it is something I should think about. Also damage to goods in shops.

A friend who is immunocompromised has just been called for her fourth vaccine which she will take because she hasn't had an adverse reaction to the first three. I am due my booster (a fourth after an additional primary vaccine) but my GP has said it is too risky after previous reactions. I was...

As am I but avoiding getting it becomes more difficult when covid restrictions are all removed as it looks as if they may be in UK before the end of this month. Which brings us to antivirals and other medication for covid referred to by Dr Shepherd in the statement a couple of posts back...

Thank you @Robert 1973 for engaging with Independent Sage in this way and for responding so clearly to its response, and to @Caroline Struthers for her quick challenge to Prof Reicher's comment. When your question was being read, I thought I saw engagement in the body language of several...

Moved post Has anyone looked into getting paxlovid (Pfizer's tablet treatment for covid) if they get a positive covid test? Covid is rearing its head in spades round here- 3 close friends diagnosed in a week. I haven't seen them physically for over a year but I do have two medical...

Paxlovid Medicines Regulator UK approves Pfizer paxlovid as a treatment for covid. It has a high success rate if taken early in the illness. https://www.theguardian.com/world/2021/dec/31/uk-medicines-regulator-approves-pfizers-life-saving-covid-pill-paxlovid

. My recently acquired power chair, which I control, does have the facility for attendant driving by moving the drive unit to the back of the wheelchair, but we have never actually tried it because I am so comfortable driving and this does bring a wonderful feeling of freedom. Gratefully, I...

I felt such relief today when it was announced that there will not be a fourth vaccination in the immediate future. I am coming up to the first anniversary of my first AZ, and since then have pondered and oscillated about having the next vaccine. I have now had three all with unpleasant...

I bought a wheelchair from Wheelfreedom in the summer. Be prepared to look independently. They seemed very keen for me to try a particular model which I quickly knew was not for me. I had to be persistent in pursuing my own choice, maybe because the staff member we were dealing with struggled...