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My Bella ME! You were a child of the sun And the sky and the deep blue sea. Good luck getting that tune out of your head. :)

I don't know that. I don't remember the specifics of every study of theirs I read. But I suspect it since I do seem to recall Lipkin admonishing ME/CFS researchers not to look at tissue, or something to that end. With my memory, maybe I am misremembering, but it was striking at the time, so I...

Bet they were looking in the wrong places.

My understanding is the NIH is channeling $3 Billion into its new Interdisciplinary Hedonism Division. It has high hopes it will cure pretty much everything, but if it doesn't, it will be fun having tried.

I have come to realize many doctors are entitled pricks who resent the oafish patients they must endure and tend to, resent the reduced pay they are forced to accept, scream against the Fates that stole their promised luxuries, find too little solace in drinking too much too frequently, and...

No chance they meant Civil Scourge?

LOL. Rheumatologists and infectious diseases are not necessarily a marriage made in Heaven. Perhaps more to the point, was a govt EIS rep the right type to be investigating what might have been a govt-made fire?

This was organized and conducted over at least two decades. DOD would have vested interests. There'd be cross-elastic benefits from participation to varying degrees, I'd wager, among multiple agencies. So my guess is there are some who have inherited this knowledge, and who continue to manage...

The deliberate mischaracterization of the typical late stage Lyme patient suggests to me that some people know. To be sure, not many. But someone is dragging the collective medical communities' feet on direct testing, and that orchestration has to be for a reason that extends well beyond either...

Too late for a large swath of the late stage Lyme community, which received that broad brush stroke characterization by a former senior NIH peep (I think), back like 12 years or so ago. :) Edit to add: Just as there are those within the ME/CFS community who question the extent of the NIH and...

@chrisb, don't know if you've seen this 1980 letter from Allen Steere to WB about Rickettsia testing in Lyme patients...

Right. Sigh.

https://jnnp.bmj.com/content/89/12/1308

Can't read it, but Oh Dear, not the same Mark J. Edwards that believes in Functional Cognitive Disorder, ie no organic cause, in CFS and fibromyalgia??

Now this is depressing. It suggests (to me, at least) they don't know how to cure whatever it is, and there is nothing on the horizon. When I first tested positive for Babesia, I was lucky enough to talk with one of the few experts in Babesiosis. When I pressed him about treatment, he countered...

Oh, I have problems with much of what he wrote. He mixes good solid data - like the Benach tidbit - with banal references like how long borrelia has been around, as if strain manipulation wasn't a thing, let alone friggen evolution.

Of course, if it's an active pathogen of any sort, an immune modulator does seem somewhat potentially counter-intuitive. This is the gamble many of those who push the post-treatment Lyme Syndrome theory and espouse things like Plaquenil. Perhaps there is merit to quieting the immune response...

I am familiar with his name. This is not the first time I have come across it. That's the best I can do, though. As for his piece, I don't think it will levy any meaningful impact on those who know anything about the history of Lyme, nor do I think those would be his intended target. I expect...

We knew this was coming. This is only the second I'm aware of in five or so months, though. I don't think his attack is very good. It's actually quite easy to counter on many points. But the biggest red flag is he invokes "conspiracy theorists." He did not need to. All he needed to do, if he...

In the end, he says very little here, at least definitively. All he has done is open up a whole batch of hypotheticals. Let's see: 1)Could be that the viruses found in healthy controls and the cohort do not cause symptoms in the former, but do in the latter; 2) They are missing the correct...