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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3551238/ Th above is by Judith Miklossy, highly respected in research involving different types of spirochetal brain infections. It's an interesting read, and can help anyone who is interested in perhaps getting a handle on why chronic Lyme or late...

I would tend to agree with you, especially in the UK where Lyme is not thought to be endemic. I live in a Lyme endemic region, and I know even here sometimes people get diagnosed with ME/CFS without ever being tested for tick-borne diseases (although that is becoming a rarity).

I do not know. But I see mold sensitivities discussed in both ME and Lyme forums. As for immune dysfunction, Lyme does that in spades. Antigenic variation is its most famous immune ploy. This causes IgG cases to go IgM, i.e, late stage to early stage, and this should not happen, and IDSA...

Yes. By far the great majority seem to make a full recovery if caught and treated early. Yes. But the greater risk of things going South occur when it is NOT caught early. Then the incidences of complications and difficult treatment reports rise significantly. You don't want Lyme to get...

Just as CFS patients historically have been questionably represented by the press at times, so too have Lyme patients. Mold sensitivities have been reported by both communities. I do not know how this works as I do not suffer from a mold sensitivity. It could be this person has ME/CFS and does...

It's just late stage Lyme. Think late stage syphilis. Remember when it could not be cured? Late stage Lyme is the same thing for as many as one in 5 sufferers - some think more. (Both are spirochetes, btw). People put too much weight behind the word chronic; its use shouldn't matter, but it...

Sorry, I was in a bit of a rush before. Ok, so what you have written here is really the crux as I see it. Yes, Lyme is Borrelia by definition. We can get into other tbd that are often mistakenly referred to as Lyme, but that is a separate matter. But Bb when it disseminates can manifest itself...

I have written often that tick-borne diseases come in packages these days. Sometimes one of the gifts is a meat allergy whose theorized cause is tick saliva. It's happening with a growing frequency, for example, in southwestern US communities where the lone stare tick thrives. This is a fact...

You may wish to acquaint yourself with Lyme meat allergy. Lyme is also associated with MCAS. Please explain how Lyme differs from ME/CFS except purportedly for PEM and pain in joints with swelling. Clinically they are virtually indistinguishable. You need labs to determine one from the other...

Ok, so what would justify overturning an ME/CFS diagnosis for one of Lyme?

A lot to deconstruct here. At the very least, it is well-established that Borrelia messes with immune systems. No doubt. The human element aside, who cares? :) Why should this be the take away? The take away for me is that diagnostics for both diseases are a joke and state governance for...

Because it underscores what far too many in our communities have to suffer through. Because it invites scrutiny to several different but inter-related issues that both ME/CFS and Lyme patients grapple with, i.e., pitiful diagnostics, inadequate treatments, possible charlatans, lousy government...

I'm a yankee, so my bad. But maybe the story is agnostic enough to fall under the weight of its own inadequacies vs those of its slant? Quacks are a possibility, but there's too many unknowns imo to go there. The herbal treatment thing could be because the treating physician is concerned about...

http://www.dailymail.co.uk/health/article-5897073/Lyme-disease-sufferer-27-forced-live-TENT.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490 The above is a story that appeared in The Daily Mail. I have no idea how reputable that paper is. I know how one can go from a Lyme diagnosis to one of...

Extraordinary. I doubt there are even 10 of these in the whole of the US, and those 10 are renowned clinician/researchers.

Buckle up...: https://willtherebecake.org/2015/04/06/lyme-be-weird-the-twilight-zone-of-neurological-lyme/

@chrisb , I read the article. Good stuff. You were right: He says many things that I can agree with. But the major thrust of his message is just a nonstarter. I don't have to even bring in the false illness belief crap and his Brucellosis references. His fascination with the idea scientists (and...

Thank you, @chrisb , for the article. Mental disease as a social construct? This guy is interesting in an annoying way. It's a longish piece, so it may take me a bit, but I look forward to reading the whole thing today. The thing about the idea of chronic Lyme, and patients who are sick and...

Thank you, @Starlight . I used to post a lot about Lyme on a forum dedicated to Lyme, but as I grew more ill I gradually stopped. This is like coming home again. :) Yes, disturbing stuff. One of the study team had a degree in socio-anthropology - to study Lyme patients some of whom apparently...

I might comment that ME/CFS is not characterized by fatigue; that it is instead an amalgam of symptoms, of which extreme fatigue can be one. Further, I would suggest its defining characteristic is PEM.